lf you were running this board - thats all of you - what changes would you make for the better.
l feel we do not need all these different forums. Why should we have the Asian group seperated from EL - and the young/newly diagnosed all need to be with EL to experience all our knowledge and compassion.
l would like to see a seperate forum for ‘Funnies’ - and one for DMT’s - and another for Bladder and Bowel problems. Then we can look up exactly what interests us. For the lucky ones who do not have the B&B issues - they need not be kept reminded of it. And us with PP/SP/ MS need not read about the problems - and there are many - of DMT’s.
Perhaps, it would be easier to moderate -and people would feel it is more like the old board. And as for banning folk - well l think we should be given the option to decide.
At the end of the day ( start and middle too ) we all need a bit of help. cheer, advice etc sometimes so I really wish things would settle down and be positive like a forum should be.
It is fine to have a good winge, ok to be down sometimes, we are only here because we know it helps…what IS the big deal.
Sad when peeps who try to help get put off posting.
In response to Spacejacket’s comment about there being a separate ‘Asian Board’.
I remember when the idea of having a separate ‘Asian Board’ was mooted. There was a lot of opposition from regular users about this and people who objected to the setting up of a separate board were accused of racism and a number of those who objected were banned for what was perceived as racist attitudes.
I recall posting a message supporting the idea of having a separate board for Asian MSers - if I remember correctly I was one of the few who supported this. I took the pragmatic view that the board should exist and would flourish or wither depending on the number of users.
There was a genuine feeling amongst many on this site that there shouldn’t be a separate board and accusations of racism were made. I was under the impression that some people had been banned - certainly some people were aggrieved that their view that there shouldn’t be a splintering off of this discrete group was perceived as racist.
I’ve not been here long i would just like to say a big thankyou to you all that have given me advice and are keeping me going through my painful journey.And pigpen my name is in memory of my cat too who passed on in November 16 years old.A big thankyou guys.xxx
I used to come on here alot but I only drop in now and again to see whats happening the last few times I’ve dropped by there always seems to be some of the people that have been here a long time they’re either left or leaving it seems to be the fun light hearted ones
I belong to a couple of closed UK MS Facebook groups that are for the treatment I’m on they have the fun but also serious and helpful sides.
