Hi,
My name is Tilly. I am new to the forum. I have read some of the things that have been posted and you sound like a really friendly and helpful and genuine bunch of people. It will be good to speak to people who know exactly what I am talking about. I have some good friends and my sisters are great But I feel bad if I am always talking to them about my down days. I was diagnosed in sept 2010 although it turns out I had my first relapse in 1996 (optic neuritis). It’s strange to think I had MS all these years and didn’t know, although I’m glad I didn’t know as I would have been petrified about any strange sensations or problems as I am a worrier! My husband also has MS! He was diagnosed 11 yrs ago. Is there anyone else out there in the same siruation? We obviously have an understanding of how the other is feeling but we deal with it in different ways which can be frustrating sometimes. I have only just got to the stage of realising that this fatigue business can’t be ignored, so I am wrestling with that at the moment! Like should I go and have a lie down this afternoon?! I hate the way it impacts so much on everyday life!!
I look forward to hearing from other MSers.
Lol
Tilly
Hi Tilly and welcome…to you and your hubby.
Now that is a rare coincidence, I reckon, for 2 msers to marry, without knowing they are msers!
About the afternoon lie down…if you want/need one, then go ahead…nowt wrong wi that!
Yep, here you`ll find advice, support, friendship and even a laff or two.
luv Pollx
Hi Tilly
Welcome to the forum! You’re quite right, everyone here is very friendly and supportive. I went through a very bad time when I was diagnosed at the end of 2011. Felt like no one understood and I was on my own. This forum helped get through some black days. I’m happy to say I’m much better adjusted to everything now although as you’re well aware MS will kick you up the backside just when you’re least expecting it. I only had a very basic awareness of MS before I was diagnosed and didn’t know of anyone who had it. I was very surprised to read that your husband also has MS. I’ve certainly never heard of that before. You’re right about the fatigue, it’s a killer. I try and push through it as I feel worse after a nap.
All the best
JZ
Hi Tilly, hello and welcome.
I have only been on this site a week but its full of great people all going through the same thing.I have only recently been diagnosed but mine started 8 years ago with optic n also. When i lookback i knew what i had as my aunt also has ms so i knew the symptoms but i chose to stick two fingers up at it and just crack on with life regardless. I must say you are unlucky to have a husband who also has it though, Not quite as unlucky as me. my fiancee decided to leave when things got hard for a while(rubbish) but a blessing in disguise as it showed the kind of person she was.Anyway back to the fatigue thing. From my experience you just have to learn to listen to your body as i tried to ignore it and ended up doing myself in.I have learnt to recognise the difference between just feeling a bit lethargic in which case i force myself to go for for a blast on the bike and feel 10 times better after or if you are genuinly really tired, only you will know this, its a fine line which i still misjudge somedays. Remember you are not giving in by resting when you need to you are just being wise but as soon as you feel brighter get that ass up.
Stay strong and take care.
Welcome Tilly,
I had a ex who had MS and I didn’t know that when we met. I suppose its becoming more common.
I hope to hear from you anon
JBK x
Welcome Tilly. It’s becoming a common disease that’s for sure. There is a lady on this site who met her now husband… He has M.S and then a few years later she was also diagnosed with M.S. I can’t remember her name (I blame the m.s for that blip) but hopefully she’ll see your post. In terms of the fatigue its important to listen to your body. Have a little nap. I sometimes find a quick power nap sorts things but must admit the fatigue is not a massive issue for me at the moment. Dodgy left leg is a pain in the butt though. I also agree with karate Dave in that sometimes its distinguishing between fatigue and feeling lethargic as exercise definitely helps to an extent with fatigue. And karate Dave at least your ex showed her true colours. Better now than later hun xxx