Soooo nervous

Those of you who know my storey will appreciate why. After my diagnosis with the “nasty neuro”, I am really dreading my appt with the new neuro tomorrow. What if he’s as dismissive ? I just want someone to help !! 6 months after this episode started, I am no further forward, excepting the amytrip from GP and massive help from MS nurse. I am so scared, I’m going to be no further forward, although I don’t know what he’s going to say or do either. I guess, as it’s a rereferral, the whole process of history taking and making me perform like a seal, starts all over again. I wish I hadn’t bothered and just never gone back to see a neuro ever again. What if he hates me, like the last one. What if he says everything is “functional” like the last one. What if he tells me to “belt up”, like the last one. What if he says it’s “just benign” like the last one. OMG …arrrrggggghhhhhh…

I know how you feel. I have appointment with new neuro in two weeks time after similar experience as you. Am now dreading it as I think this neuro is going to hate me too. I’m sure you’ll not be as unlucky again. My fingers are crossed for you.x

Hello! This is a bit weird as I was talking to myself today (this is normal madness for me!) and I said, I wonder how Mrs H is, haven’t seen her on the forum of late. Tee hee and here you are!! I am sorry that due to your last Neuro experiences you are so nervous tomorrow. I really don’t blame you as not a nice thing to go through :frowning: I know it’s hard but try to go in thinking, this Neuro will be great and I will get sensible, logical answers!! I was very nervous before I saw my first Neuro because of all the pootang I had gone through with GPs over the years. To my joy after all the nerves, I went from a bumbling Clouseau to Sherlock Holmes! I really hope the appointment goes well and that you get a pleasant Neuro who has looked into everything properly to give you the care and treatment you need and deserve :slight_smile: Big hugs x Sam x

Hi Catherine, You’re bound to be nervous about it but just try to be as calm and lucid as you can. You will probably have to repeat everything you have already said but be as concise as you can without leaving out the main points. I hope this neuro will start you on a blank page and give you the benefit of the doubt. Good luck - will be thinking of you tomorrow and sending you good vibes! Teresa xx

Thanks everyone. Xx Spooky, Sam…we’ve been having a mare ish time in the H household. What with MS, hubby’s daughter had a preventative double mastectomy after learning she had inherited the family cancer gene and then a couple of weeks ago, police had to break into hubby’s step mum’s house over in Lancashire and found her passed away. So all a bit gloomy.

Oh my goodness :frowning: I don’t know what to say, I’m so sorry. My very best wishes for tomorrow. Sam x

Thanks, Sam. I feel ick…!!! Or it might be the chocolate torte…nope it’s def the thought of being belittled and dismissed again, tomorrow. Xx

Sorry for the stressful time you have had - it sounds like you’ve all really been through the mill! Hopefully you’ll be neither belittled nor dismissed tomorrow but taken seriously and listened to. Good luck - keep us posted. Teresa xx

If you can deal with lawyers and judges on a daily basis, a neuro will be a walk in the park. Try to pretend that you aren’t talking about you. You are presenting a case - dry details. The neuro is (gathering and then) presenting expert evidence. You are then questioning the expert witness (nicely!). If it was a court, you could do it in your sleep!

The last neuro was a nasty piece of work who didn’t actually know all that much by the sounds of things. A lot of neuros are arrogant and missed 101 Bedside Manners and Empathy, but most MS specialists aren’t nasty with it and they tend to actually know what they are talking about.

I’m sure it will be fine :slight_smile:

One thing: don’t diss the last neuro. Some neuros stick together when challenged :frowning:

Sorry to hear about all that’s been going on. I hope tomorrow is the first day of things getting better.

Karen x

Thanks Karen. Yikey schmikey…today is here…can’t seem to control my heart rate…appt is not until 1.25pm…get a grip MrsH.

We are behind you and around you.Follow Karen’s advice and remember your questions.Every one I’ve been to has asked, what we’re you hoping to get out of today? Be ready with a clear and concise answer just in case. Good luck

good luck today


Thanks Medion and Pip. The only two questions I have are; Please can you help with the dizziness which I’ve had for 6 months How hopeful should I be that this is going to get any better…at least enough for me to drive and get back to work I guess I should be asking what type of MS I’ve got but I don’t know whether they can answer that without the benefit of time and monitoring…so is that a daft question ? I can’t think of anything else…can anyone advise please ! My head is just spinning and I’m too nervous and scared to say anything else in case he views me in the same way as the previous neuro.

Hi Catherine, I don’t think any questions relating to your illness/symptoms are daft - after all, he is the expert on matters neurological not you. Ask questions that you are desperate for answers to! Dizziness can be helped with meds, so hopefully he will recommend something to help. If your OH is going with you, perhaps there is a question that he would like to get an answer to? Write anything down that is paramount to you to have answered. I hope it goes well for you. Let us know, Teresa xx

Hi Catherine,

I feel the same way, I have a FU on the 14th it was suppose to be 3 months but was actua;;y 9 months, They sent me away aying they think its a one of isolated insident and that I should see a counilor and do CBT, ok I am on anti depressents and have done CBT and did what was ask, but I still truggle to walk each day. Im scared that she will ask me to do all the tests again, the first time i went through i was admitted to hospital and who wouldnt be depressed at 27 spending 3 weeks in a stroke ward !!! it played with my mind. Ok without ranting on, I tihnk its normall to feel like this and we are all hear for you. I will be going through what you are very soon.

I will also be seeking a second opinion and bancrupting ourselfs to see someone privately if it means ill be taken seriously…

Wooooooooooooooooooooooooohoooooooooooooooooooooooooo And further Weeeeeeeeeeeeeeeeeeeeeeeeeyheeeeeeeeeeeeeeeeeeeeeeeeeyyyyyyyy Get in, what a result, fandaby dozy, yahadadadooooooooooooooooooo I’ll calm down, wipe the Cheshire Cat grin off my face and tell all in a mo

Yay in advance and anticipation!

xxxxxx in advance!!! x

Come on then hun share the good news it would seem you have :slight_smile:

Glad ur smiling still so im guessing thaat he was the complete opo to the nasty neuro xxx

Lou :slight_smile:

Ooh, can’t wait to find out what the wooooooooooooohoooooooooo and weeeeeeeeeeeeeheeeeeeey is all about!! Sam x