Forum

Scared for the 1st time.....

Hi All

After a looooong 24 week wait to see neuro, I finally get to see him at the end of next week and I am starting to feel very anxious. This will be my 6th different hospital department in 2 years to find out what is going on with me and I am not scared that he will find anything wrong with me, but scared that he won’t.

Over the last 2 years, I have had my fair share of nice and not so nice specialists but for the most part can’t complain so why I am worried about this guy, I have no idea. I am probably just being a muppet.

I guess I am just hoping that he tells me there is something to investiage rather than just telling me I am stressed or depressed. For the record, I am neither. lol

Sorry for the off load. Lets see what happens eh?

Angela xx

Hi Angela, off load all you want. It is definitely worse not knowing what is wrong. When you know what it is, you know what you are dealing with. I hope this appt sheds some light on it and they find answers for you. I will be keeping my fingers crossed for you

Sharon xx

Hi Angela, I did the rounds for years and still havent got a definitive diagnosis.

Sadly some folk have been discharged or told it is all in their head, but I never had that to deal with.

A tip someone once gave me was not to cry or rant in front of a neuro, as they may put you down as suffering from a mental condition. And that is enough to send you into one, eh? I did once voice my disappointment at not being diagnosed after so long. Then I asked to be referred to a top MS bloke in another hospital. he wouldnt see me!

Hope things go well next week. I see a new neuro in 5 weeks. Guess i`ll be going through the whole story again…15 years of it!

luv Pollx

Hope everything goes ok for you. Let us know how it goes. So hope you don’t get fobbed off X

Sharon - Thanks for that - I don’t feel like I am going completely crazy now. lol

Arwen - Yes, I will do and thanks. Will not accept a stress diagnosis so will push for further investigations :slight_smile:

Poll - I know I am being irrational, but I can’t seem to help it. I don’t belive trigeminal neuralgia can be caused by stress (although stress can make it worse) so there is definately something there to investigate. Its all the other invisible symptoms that make me sound like a loon when I tell people. lol. The hubby is coming with me. Not only for emotional support, but to tell the neuro everything I won’t (he knows full well that I try to play everything down). I have a brief but concise symptom list which I will be taking with me. I have just got to woman up and get on with it. I refuse to be scared of a doctor!!!

Thanks all. Will keep you informed.
Angela xx

Don’t be frightened of the doctor angela…they are just like the rest of us…believe me, I’ve worked with a few. When your sat in front of neuro tomorrow, imagine him/her dressed up as a clown or in their underwear lol…whatever you like. If nothing else it might make you smile. Good luck, Noreen x

[quote=“Blossom”]

Don’t be frightened of the doctor angela…they are just like the rest of us…believe me, I’ve worked with a few. When your sat in front of neuro tomorrow, imagine him/her dressed up as a clown or in their underwear lol…whatever you like. If nothing else it might make you smile. Good luck, Noreen x

[/quote] A clown :open_mouth: that would have me running out screaming at my appt lol A x