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DLA / PIP moans and groans!

Hi gang, My DLA is due to end in November so naturally I was expecting PIP forms to arrive soon.

Guess what dropped through my letterbox this morning?

Bloody DLA form!!!

Means I have to apply for DLA again and then probably in just a few months I’ll have to apply for PIP!

I didn’t think they were even sending out DLA forms anymore.

Spitting nails. I have to go through this incredibly exhausting process twice!

Pat xx

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Phoned them. PIP isn’t in my area yet… so yes, I have to re-apply for DLA & then will have to apply for PIP.

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Who is PIP I had a cousin who we called PIP his name was Philip

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Oh bloody hell Pat how annoying, would make life so much easier if these people had half an ounce of common sense.

Can understand your frustration.

Pam x

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Poor you!!!

Mags xx

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The blasted forms are not easy to fill out the first time let alone having to go through it twice. I wonder if it would help if you photocopied the DLA firm when you have completed it,then you may have a starting point when the PIP form comes.

Lyn

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Thanks all… yes I have a copy of my last DLA application so that will help. Also got all my ESA answers so those will help too.

Apparently the date for rolling out PIP in my part of London is July… so chances are I’ll get the PIP form before I’ve even got the DLA award.

Although then again with the delays it might (hopefully) take longer so I at least recover from working on one form before I start on another!

The lunatics have taken over the asylum…

Pat xx

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Pat, It goes beyond all bounds of common sense. I have no idea when the PIP is coming to the lofty heights of Crowborough. I didn’t know you had to re-apply for DLA either. Is that common. I last filled a form out when I went for the highest domestic allowance in 2007.

Best wishes, Steve. x

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Steve, it depends if you get ‘indefinite’ or not. I’ve never got indefinite. First I got it for 2 years, then I got it for 3 years & the last time I got it for 5 years.

Admittedly on my first application I was mis-dx with ME which can get better… for that I had to appeal and go to a Nazi-style hearing.

But for my last application I was dx PPMS. Do they think I’m going to get better? I rather admire their optimism!

Well there’s nothing I can do but bite the bullet and fill out the forms.

Such is life.

Pat xx

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Nightmare! That is so annoying and I bet they ask different questions so I guess you can’t just copy the details over. Hope you get as pain free application process as possible

Sonia x

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I recently applied for the care component, because I already had Mobility DLA I had to fill in a DLA form for the care part. No doubt I will have to go the PIP route very soon. Total waste of time and resources.

Good luck one and all.

Jan x

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Unbelievable Pat! Good luck filling in the forms.

Nina xx

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Am on standard level of PIP but am intending to apply for the enhanced level so that I can apply for Motability. Five weeks ago I phoned to ask for necessary forms! Told they will arrive by 2 July. Ridiculous.

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What a nuisance Pat. At least you’ll continue to get paid until your new award is finalised. I make copies of all my forms too and if something changes with my next claim I correct it in a different colour so it’s much easier with each application.

My current awards expire in 2018 but they’re rolling PIP out here so I’m unsure whether I’ll have to claim again soon.

I wish you patience, strength and luck… I cringe every time a brown or large envelope hits the doormat.

Cath x

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Thats so annoying Pat,that you will have twice the hassle, i am not yet transferd to ESA i am still on IB due to all the backlog,

i bet you that i will have the ESA to apply for and PIP at the same time,i just want the ESA forms to come so i can at least deal with applying for one thing at a b****y time grrrrrrrrrrrr i feel worn out just thinking about all that hassle…

J x

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How are you getting on with the forms Pat? You must be utterly exhausted, they are such a nightmare!

Sending you secretarial vibes and hugs!

Nina xx

It’s hell actually. Been in tears several times with it.

I know you’re meant to answer the questions saying how having a person there with you would help, but then it asks for names and addresses of carers.

I don’t actually have carers. I have a cleaner and another person who does stuff for me, but not personal care. So surely they must wonder if you are getting DLA why you don’t have a carer?

It’s not always easy managing on my own (if fact it’s not easy at all… but I send my laundry out, I have frozen meals delivered etc etc) and don’t want a carer until I really need one.

Well I’m hoping to finish it tomorrow but it’s so exhausting and confusing.

Hey ho… I’m trying to keep perspective. After all in most countries in the world this level of benefit is unheard of.

Sorry… that was just one long moan.

Pat xx

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Hi Pat

As far as I am aware DLA is also to enable to pay someone for doing chores or errands for you, not just personal care, so I wouldn’t stress too much over that.

Some people claim DLA while working, so I can’t think because you don’t have a carer, your entitlement would stop, you are entitled to it cos you have a debilitating illness.

The process is a nightmare, the last form we had to fill out was like a book, you can’t do it in one go, its exhausting, so I feel for you.

Keep your chin up girl ((((hugs))))

Pam x

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Thanks Pam. Good advice.

It’s such an emotional thing… even though I know it’s an emotional process it shocks me how upsetting it is. I suppose it’s because we muddle along in our own little way and sort of get used to all the symptoms… but having to write them down and explain every little thing brings it all into the spotlight.

Really appreciate your support Pam.

Pat xx

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Hi Pat try to geta good nights sleep it is amazing how form filling stresses you I think it just brings all your frustrations,problems and symptoms to the surface. It is amazing how you deal with stuff every day and it isn’t until you have to write it down that you realise how you are affected and to put it mildly it is B****Y upseting and frightening, I must be tired my spell check is going into overload, Good luck sue

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