It’s been a while since I last visited but after 15 years, diagnosed 31, wheelchair user at 35, I’ve moved on to even greener pastures and need advice. I was able to weight bear until the beginning of this year and now my transfer to shower and especially the toilet are hit and miss but mostly miss. OT has ordered a shower chair to minimise breaking my ankles doing a pivot from power wheelchair to shower chair, but we aren’t getting anywhere with the toilet as I don’t have the power to use a dolphin slide board.
im waiting to learn isc ( could I cath straight into loo from chair and how long does it take to learn- I shudder at the embarrassment) but I’m generally feeling miserable. I’m a writer and my hand has finally given up the ghost (dragon voice doesn’t quite cut it). If ms could ever come tumbling down in one go this seems to be it. My partner has to do most things but not someone I can talk to- ‘it could be worse’ or seems peeved at times when I need repeated help.
i don’t know how it goes from here. If you can’t stand how do you do your bowel routine? As it is my social life has just ended as I can’t now get off a public toilet.
how do we manage in our own homes let alone in the world? How do we stay independent in our day-today functioning?
ps - shower chair just arrived and I don’t know how to transfer from my power chair to shower chair . . . ho hum.