I am really struggling right now and need some advice, some help and perhaps some support. I will try to break down everything but it is a little complicated as It started in the US health care and now I am living in the UK again. I feel like I am going crazy and it is my head … I am close to the edge and it is not getting better. Please if you have advice I need you. I will shorten it as much as I can.
From the UK married an American guy we moved over there in 2015 and then everything was dandy (2 kids and 22 years old) until 2020…
February 2020 In the Bath I was shaving my legs and I realised I couldn’t feel what I was shaving and got a little scared but thought it would be fine.
14th March 2020 Woke up and couldn’t feel my left foot it completely dropped and I was scared, my legs felt numb and fuzzy
16th March Doctors sent me to A&E, They did blood tests and CT with no contrast they didn’t find anything but referred me to have a brain MRI.
Confirmed the foot drop and gave me Methylprednisolone 4 mg
6th April 2020 Brain Mri with and without contrast (all normal)
prescribed Methylprednisolone 20mg
Returned to the UK
8th March 2021 Legs started to feel numb, depressed, weightloss (20+lbs) headaches, tired, pinsand needles hands.
24th April 2021 Neurophyaiology appointment (Nerve conduction, EMG = all normal)
26th May 2021 MRI, head, spine cervical, spine thoracic, lumbar spine, sacral. = lost results
28th September 2021 MRI brain with contrast = nothing heard but chased with the doctor who said it is fine.
5th June 2021 Legs numb, going to the toilet alot, pins and needles in hands, can’t grip, tired so much, headaches, (tripped over my feet at work causing injury)
9th March 2022Extreme red eyes, Itching all over, sickness, shaking, temp, tiredness, weakness, ache, sore throat. Blood test Positive for Epstein Barr Virus (Glandular Fever)
13th June 2022 numbness in the left foot, tingling in both legs, itching legs, Migrains, sleeping all the time, weakness, (During the crazy heat we had)
= The doctor signed me off work, upped my Sertraline to 150mg and booked a Neurology appointment (February 2024).
27th October 2023 Itching all over my body feels like ants crawling all over me, one enlarged gland in the right side of my neck ???
30th October 2023 The Toes on my right foot started Burning like there was a fire under them, almost made me cry it was so painful (lasting around 30 mins) then my body started itching - the back of both legs, under the bra, stap, face, under arms, hair. Then my face started burning on the left side only and it felt so hot.
What is going on with me?? Is it in my head?? I can’t take it anymore I am a Teaching assistant 31 years old and this is killing me because no one can see it. **what can I do?? **
Thank you for listening I needed to get it out