I dont know if im going through a minor relapse or what! First just a numb/tingly left hand, now my right is just as bad. Both have got worse, i keep dropping everything! Or it flys out my hand and i dont notice. It sucks, i have not been able to feel my left hand for over a year and a half, now my right, o really hope im not stuck with both feeling like this for life, is sttessing me out, can barly type on my phone anympre! Mini rant, just had to let ot out, really wosh it would qll go away now! I think my coordinations going again too. Some days its hardbto tell if its worse because you just get used to it day by day
hi ssam
get in touch with your ms nurse, hopefully she/he will be able to help but at least it will be put on your records.
i know its always “rest, rest and rest again” but you really need to rest!
find something that relaxes you - watch a film, read a book, listen to music.
get your head into a good place.
hope this relapse passes soon.
carole x
Hi Ssam Hope you’re managing to get some sleep. You do kinda tend to ‘just’ live with things like you say it’s hard to tell if it’s something that is getting worse or not. Hope you have family and peeps around you that can give you some hugs and support. Maybe try your MS Nurse or GP if you can , see what they suggest? Will check back with you later in the day see how you are feeling. Mich x
Sleeps the easy part, but it certainly doesnt feel like i have close to enough, my past 2 days have consisted of laying in bed watching movies. Really not feeling up to work today, but i do not want to take time off untill its actually a bad relapse! Or i doubt ill ever go back!
One thing ive noticed♣
One thing ive noticed is slacking on things, i used to be the kind of person who would shower everyday, i didnt want to leave the house if i didnt, now the energy is not there to have it, its more like every other day, but i really still cant be bothered, but i feel horrible. really does take a big toll on your day to day lifestyle!
hi ssam
you are right about the showering. i get up full of beans, jump in the shower and then try to get dressed when all i want to do is get back in bed.
i’ve done something stupid today and changed the duvet cover by myself instead of waiting for my cleaner to help me.
so thats my quota of energy gone for the day
anyway now its time for my shower, wish me luck
carole x
Sorry it’s a late ‘how ya doing?’ Sam… Hope as the day has gone on you’ve felt a bit more up beat. Did you manage to get into work? It’s hard as symptoms can prevent you from doing things like you say everyday things like having a shower which is a simple task to someone who has the energy. If you can side line the frustration and try not to beat yourself up about the little things maybe you can then enjoy the bigger things,if you can’t manage a shower have a good wash check for the ‘tatey’s’ behind your ears of course. Or I have a myriad of wipes for everything obviously don’t mistake your Mr Muscle Surface wipes for your face cleansers, just think out of the box, make it easy on yourself xx Michelle x
I do have lots of facial wipes, i use them before.bed anyways 
although not as much needed as i do not wear much make up any more! i did go to work, once i get there i get on with it, its the waking up and getting there, then once im there time goes quick! i know the feeling about bed sheets, my step mum does it for me 
Never mind don’t think you got what I was meaning…hope you feel able to shower soon!
Oh im still showering if not everyday, every other day! If its the one thing a day i could do its that!
I think we have worse days than others and its the unpredictability of this that makes it worse at times hope it improves x
I get the showering thing ESP with first attack Now I’ve Sussed baths help me my muscles relax. I know it cause some weakness maybe does a bit me but it’s soothing I take the shower down for rinsing my hair. I got pissed off the other day mum commented on my hair didn’t look so groomed as I hadn’t dried it. She couldn’t get that if I did that it used energy I needed for the kids But unless u have it u can’t understand. They see me I look the same but I know everything’s different Grrrr I’m mowing going to have my bath go to bed with my hair wet and will straighten it in the morning. Luckily I have straight hair naturally so will take 2 mins. I loved grooming before now it just takes energy Good luck X
Glad im not the only one. Definatly a relapse, within 2 hours i felt myself going downhill today, arms are in agony! so stressfull with work, i finally have the job i want. But i think im gonna have to gve it upp (i drive a bus) but when i relapse i cant do anything compiter bassed so offive work is out the question. I cant use my fingers. It worrys me though, what my financial and work situation is going to be like
I worry too As my fingers are wonky. My arms get tired and sore walking is a nightmare Plus with kids, though I often think I’d be less sore working but I didn’t have kids to dish them out to people I used to take my son everywhere. I took my daughter to a hotel for the night alone at 3 weeks old. The difference in a year is scary X
yeah, i got my merlin pass in may last year, i had enery for theme parks, i went thorpe park a couple weeks ago. Within 3 hours i went home! Shocked myself!
Is anybody else waiting for P.I.P. I applied last July, costs a fortune ringing 0845 to chase up P.I.P. office and Atos. This week Atos offered me an appointment for assessment at the end of May in Portsmouth. Either 4 hours on the bus, or an expensive 1 1/2 hour train journey, then Taxi or walk. Physically and financially just impossible. I had to cash in my private pension early at the end of last year to carrying on affording my physio & excercise classes and to move from a second floor attic with slopping ceilings.
Twice in A & E January after having fallen at home. Have now moved to a ground floor flat, but it has cost me all the rest of my pension savings in expenses & up front rent. I need help changing the bed, just cannot put on a fitted sheet. I was told to stop using the bath, too much danger that I will fall, OT connect contacted me and told me they would send a perching stool for the bathroom, also send someone to access what aids I need in the bathroom. Over a month ago, and am now ringing more 0845 numbers to chase it all up. Yoga and Pilates stopped also no cleaner until this urgent financial help arrives.
I do have a red button, free for the first six months, as I have no friends or family close to call on if I fall. My contact at Age UK told me that are are only now granting P.I.P to people in this area who applied last April - so it looks like I still have a few more months to wait.