Hi, I know I’ve already had a few posts on here, but, because I am still waiting on follow appointment from MRIs, I am going doolally wondering things. On 3 occasions now I have become very shaky on my feet, and today both feet were dragging.but, these symptoms worsen the more I do.If this is MS, would this be the case? ie, would the symptoms be there all the time? People at work only see me at beginning or end of a shift, and they must think I am making all this up, but I am worried sick. I have gonee from training loads in a week, dealing with my weight, getting fitter, to not being able to go far on my own for fear of falling.Today I had a short distance to walk, (I am a support worker), We walked only a mile and half, to get back into town to go home. Having done this walk before, with only one foot dragging, I thought I would manage it, but today, both legs, ankels and feet just didn’t want to work. It is so worrying not knowing. I just need to know from you lovely people that have been diagnosed with MS, would this happen, or would I wake up feeling/being a certain way and that would stay with me, or can I wake up not so bad and get worse?I hope I make sense.xx
I’m afraid you are not going to like the answer, but please remember what I say does not mean you do OR don’t have MS. But yes, symptoms can get worse when you are tired or have been overdoing things. BUT that’s probably true of many illnesses. Please tell me any illness that gets easier when you’re tired, as I don’t think there is one. Tina
Hi, I just didnt want to be bothering anyone on here, if what I have is definetly not MS. Last year I was climbing hills, walking 5 miles every morning. I don’t ‘feel’ tired, in myself, I find things are worsening after only 5 minutes or so of walking, and this is whats making me think would this be MS, or is this something mechanical because of a possible problem with my spine. I know, I just have to wait for MRI results.Just so frustrated as people see me and must think she looks fine to me, but they aren’t with me long enough to see what happens. Have to talk to my boss tomorrow as can’t go through what I went through yesterday again, would be irresponsible of me with the job I have.
Thanks for taking the time to reply Tina.
Andie x
Hi Andie,
Don’t feel bad about posting on a support forum - especially the bit dedicated to people like you, who don’t yet know if they’ve got MS, and may still turn out not to.
If it was easy to rule MS in or out by a simple description of symptoms, like: “I get worse when out walking”, diagnosis wouldn’t be as long and complicated as it often is. It would be wonderful if you could tell the doctor one thing like that, and he could say: “Oh, definitely not MS, then!”. But life is rarely that simple.
Yes, I’m afraid patience is the only answer.
I understand the frustration of looking fine, when you know you’re not. On the other hand, who wants to go round looking as bad as they feel? 
Tina
x
Hi Andie,
In Nov 2008 I had a sort of attack of numbness andth weakness. My legs were exhausted and my right arm felt so weak. Yet my GPs all seemed to agree that there was no real weakness. I was exhausted too. At the time I was diagnosed with a virus flu/like symptoms but no temperature. Gp thought it was not neurological. I got better after a few weeks. I went skiiing in Feb and March and felt that when I turned when skiing my right side was definately weaker. I returned to doctor and he did all these strenght tests and said that there was not true weakness. Anyway I felt a lot better but in October 2009 I went for a long walk with a friend and I noticed I couldnt flex my foot properly at the end of the walk. After a five minute rest it returned to normal. Then in March 2010 I went skiing again and yet again had problems turning on right side - my right side was just not putting enough pressure on the snow. In september 2010 I went for another long walk and the weird problem occured again.
I went to doctor saying I had drop foot. He got my to flex my foot and as I could resist him pulling it down he said I didnt have drop foot. I was sent to podiatrist and got insoles made. At this time I could still play golf as the walknig was slow with many stops so I didnt get problem.
In January 2011 when the insoles were not working I went to see neuro privately. I had MRI scan and a lesion was seen on spinal cord. As yet I do not have any dx. One theory is radiation damage and another is an attack on myelititis or CIS (in 2008) which kind of triggered of the slow development of spasticity in my calf muscle. The spastic foot drop is always there now.
Spasticty doesnt just appear, it comes on slowly over a long period of time. I had recovered well from the CIS - or so I thought - but it has taken 5 years for it to show its full colours !
Moyna xxx
Thank you both of you and wow, Moyna, really that long before it gets this bad? I just can’t believe whats going on with my legs hips ankles and feet. I can’t think of anything longer than say last summer when I started stumbling and then blamed it on the shop floor and my new shoes, when I tried to ignore it and thought maybe I am just overdoing it at the gym, but I felt so bloody good, I couldn’t keep away, lol. I am desperate to return to doing some kind of gym work but because my spines been mentioned, ive been told to swim only, to have nothing around or on my neck so weights are off the agenda.I am so pleased I did 2 things last year that I always wanted to do, because the way im feeling now, I don’t think I’ll ever be able to do it again,(hill walking). Just got home from work and again, no mail from hospital. I don’t expect it to be so soon after mri, but the radiographer said a week…wish she hadn’t, I need to know whats going on with me, as we all do I know. Sorry.one minute I’m up and next i’m down. Its like being in a hidden hell. I have to see my boss tomorrow and I just know they al going to be thinking well she walked in here ok, I am scared they will think im making it all up. I never ever expected anything ever like this.I was flying so high last year, felt amazing for the first time in my life, Tackled my weight, felt amazing, and now feel all wrong and have no control over anything.
Thank you for replying ladies.
Andie x