Do any of you get vision trouble with your relapses? I had a really bad relapse in 2006 and was partially blind for months it did get better after a while thpugh.But now im having a relapse and my visions shocking again and i am so,so scared.Its affecting my peripheral vision in my left eye mostly and i am banging into things when i move a lot too as well as not been able to see properly.I think i just need to hear that it will be ok.
Hi, I know a lot of people do have vision issues with their relapses. I do hear that vision returns but as to whether it is as good as before, I dont know. I really hope it does for you chick.
Boudsx
Hello Jaydee
I’ve had ON several times with relapses and mine has always fully remitted. (Not necessarily the case with other symptoms!)
Have you spoken to your MS nurse? Have you had steroids for the relapse? Not that they’re a cure, but just speeding up remission can help immensely. (Obviously have your wee tested to make sure you don’t have a sneaky UTI before taking steroids, some GPs don’t automatically think about doing this!)
Have a look at https://mstrust.org.uk/a-z/optic-neuritis That might reassure you a bit. I do hope it resolves very soon. ON is scary, eyesight is so important.
Sue
Diagnosed with ppms I don’t have relapses. I’ve only experienced problems with my vision twice. Once, months before my diagnosis and just this week. Each time was when I’d gone to bed. Light off and just the moonlight through the window. Total loss of vision in right eye first time, loss of vision in both eyes this time. Only lasted about a minute but not a nice experience. I’ll just mention to the neurologist next week when I see her. Presumably nothing to be done??
Hiya ,
Relapses & flares that effect your eyes are so scary :((( I’ve had weird things happen in the past with my vision , double vision, weird blurry ness etc. please call your MS team and let them know , you could maybe ask them to prescribe some oral steroids to help reduce the inflammation , even if it’s the 5mg prednisone tablets , taken in a dose that the doctors advise. Fingers crossed your vision gets better soon, take care x
I have bad eyesight to begin with; been wearing glasses since I was 8; but when I have a relapse, they blur frequently. It usually only lasts a few seconds, but it may happen nonstop for days on end, and then I’ll be fine for a few days. I’ve only had a couple episodes of double vision and never had it all go dark, but it’s always improved once the relapse is over.
I’ve had double vision twice both rectified in approx six weeks. If it persists have it investigated it isn’t necessarily caused by MS.
Best wishes
Jan x
Thanks everyone.I do think its part of this bad relapse though as i have had a bad relapse start before with a migraine aura that then caused double vision.I rang dr’s to be ref back to a neuro but i suppose it will be ages before i get to see one with this covid mess we are in.I would not want steroids anyway as i am pre diabetic and they are no good for pre diabetics.
hi jay dee, I have problems with my eyes as well comes from having had so many relapses of optic neuritis that am now registered partially sighted. Now have SPMS and need to listen more than watch. Double vision is tough too - amazing how much we take our sight for granted. I hope you keep strong during your current difficulties with eyes. Stay safe
Hello, after my ON, I found the blurriness went after about 3- 4 weeks, the black hole in the vision about the same, colour vision (red and greens -depth of colour) took a year thou to come back. In the eye that was effected I would say things are not as bright as with the other eye still and it’s been a number of years now, it’s like a slight haze - it’s like when I first started wearing glasses for the first time - could make out the letters the same but with glasses everything was bright and sharp. I also still have slight loss of peripheral vision according to my optician. However, everyone is different. Hopefully if you recovered last time it will be the case this time.
I hope yours does clear up i hate double vision i have had it twice but it didn’t last long.I had to wear a patch until it cleared.This is my peripheral vision in my left eye but as the days are going on i think the problems deeper in my brain coming from my brain stem as when i am lied down i can see fine.Its when i get up and start moving i cant see.