Very, very concerned about my step daughter

Hello there,

I have joined this forum in the hope of helping my step daughter and my wife at the moment. My step daughter is symptomatic with various symptoms. She has progressively got worse over the last year. Her symptoms in the past have included migraines, loss of vision from the side, swallowing difficulties (for which she was admitted to hospital several years ago with no definitive cause), muscular pain in her chest (which was diagnosed as costochondritis) and her current symptoms of pain in different parts of her body, numbness in various areas, fatigue, tingling in her chest like pins and needles, pain down her upper sides of her body, migraines and chronic pain.

Her symptoms can vary on a daily basis and have progressively got worse since she was pregnant over a year ago. She has described the pain as it being like she was in a car crash recently. She has recently seen an osteopath who said she felt that she had hypermobility syndrome.

My wife and I are extremely concerned as have read about MS and these symptoms and although I know you can’t diagnose someone or yourself, realise that some of her symptoms match to MS. She is 33 and has had a month off sick from work with her symptoms. She has been to her GP over several years and they haven’t really looked into things too much. She did see a neurologist but her symptoms have changed and worsened since then. The last visit to the GP, lead to the GP saying she had lack of sleep and debility problems but I have never heard of debility. Unfortunately, my step daughter doesn’t push the GP’s that much and doesn’t like to cause a fuss. She has another GP appointment next week of which, my wife and I are hoping to go with her and try and see if we can try and get a diagnosis as we feel this is what she needs and possible scans and tests.

I would appreciate any advice anybody could give as we are very worried and upset at the moment. Thanks so much.

Hello :slight_smile:

MS can only be diagnosed by a neurologist so a re-referral would be the first step. How long ago was she under the care of one?

Have you talked to her about your worries and why she is reluctant to raise it with the GP?

Hi, thanks for your reply humbug. It was about three months ago when my step daughter saw the neurologist and her symptoms have changed and worsened since then. He did say if she had any problems to get back in touch so we are thinking of getting her to ring his secretary, rather than having to go through the whole re-referral business again.

My wife is thinking about speaking to her about the whole issue and that we need to be taking action now and being decisive. It is very difficult to talk to her because she is very closed about it and is now quite despondent with her symptoms and doesn’t seem to have the energy to fight the gp to get what she wants.

Once again thank you.