Hi everyone…i’m new to all this so il try and give you some detail about my situation.
I have had symptoms of MS for about 18yrs and was diagnosed with fibro at the time and even though i began to have many more symptoms over the years i didn’t pursue it through the drs because i was treated as a hypochondriac suffering from depression…[i wasn’t depressed, just felt very low because of the symptoms]. I saw a new dr recently and mentioned, numbness, pain, clumsiness, difficulty walking, poor memory etc so he made me an urgent appointment with neurologist.
I returned today from my visit to the Neuro and she thinks it is MS and is sending me for mri… I’m not too surprised with this as i haven’t got the energy to feel frustrated or angry anymore. In the early days i felt desperate at times, that i knew there was something wrong but the drs didn’t take it seriously. In my thirties i decided to just take do whatever i could to help myself feel better…vits, alternate therapy etc.
My youngest daughter, who’s 12yrs, knows very little about my symptoms as i havent wanted to worry her. Any symptoms i’ve had that she’s been aware of, i’ve put down to getting older, [i’m 46, so i’m ancient to her!]. As i’ve toddled off to the toilet for the 5th time before we go out she has renamed me ‘incontinent mamabear’.
My worry is not myself but her. She has had problems with her legs for 2 years now which the dr put down to ‘growing pains’…constant cramp in both lower legs, difficulty sleeping and a very sore scalp where she can’t bear to brush her hair…[This is the dr that said i was just depressed and my symptoms were all in my mind]. She has every symptom i had in my 20’s when i first started with this
Over the last few months she has been getting numbness in legs, pins and needles, pain in back, feeling exhausted, etc. Took her to see a different dr who has referred her to the hospital as he thinks it is related to my condition. [she’s had a lot of blood tests to rule things out]
I feel so upset about this as i can see what she’s going through… i reassure her and try to show i’m not worried but there are days i feel i just can’t cope. It’s easier to think i have ms but horrendous if i think my daughter could have it too.
She’s back to the hospital tomorrow for more tests so i hope more than anything she has a vitamin or mineral deficiency that’s causing these symptoms…
Apologies for the long post…its been a pretty awful day all round