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Urodynamics test

I have had bladder problems for so long but now they are getting worse and have been advised to have Urodynamics. I am bothered about having and think my problems are more weakness in muscles which the MS Nurse says theres not much can be done and would mean a catheter which scares the hell out of me. Do I have the test and hope that a drug will help and not after going through it get told theres nothing we can do!! Can someone tell me about it thats actually had it or can somone advise me about after nothing can be done. Hopefully this will help me see some brighter future.

ldn helped my bladder im 90% normal now

Hi Sukiyaki, I’m sad you’re having a hard time. There are so many different options out there. It’s great that you are having urodynamics tests, they will help to really pinpoint what’s going wrong. There are loads of us here on different stages of bladder management, the doctors will usually go for the least invasive things first. I started with pads then medication. Next came intermittent catheters. After an acute period of a permanent catheter in my urethra I’ve now got a suprapubic catheter and have had Botox. I can say that I resisted each change of intervention, each one has made a big difference until they no longer met my needs. It’s important to take it one step at a time and deal with that. I really hope you never get to the level of intervention that I’m at now. I don’t know if I’ve answered your question but please talk about it if you need to. There are lots of us out there! Remember, you are stronger and braver than you think you are, Sara x

Sorry I got your name wrong, can only blame auto correct on my iPad!

I can tell you that the nurses seem very sensitive to peoples’ embarrassment and are very good at setting you at ease. From my experience a tube bundle will be inserted into the bladder, only slight discomfort as they use an anaesthetic cream and lubricant and the diameter is small. Bundle includes an input tube to fill the bladder with water/saline? and one to take pressure mesurements from muscular contractions and timings of, and one tube to channel the leaks I think on to a pad on which you lie. Another tube is placed in the rectum to measure the internal pressure changes and timings there as these readings also have to be used in the calculations (even for measuring urinary incontinence). The pressure data all goes to a computer. I think the leakage volume is assessed by weighing the pad.Test may be done a few times, and may include monitoring the effect of running water on bladder contraction, and checking how full bladder gets before urge sensation makes itself felt etc. Dont worry.

Hi, it is a difficult thing to come to terms with, when our bladders misbehave, I know only too well.

Before catheters are tried, there is medication which can stop your bladder being so sensitive and voiding before you want it to.

LDN did help mine for a while. In fact I stopped the other medication.

I wont go into catheter use, as it is not what you want to hear right now.

But if it does come into the discussion, there are plenty of us here, who can advise and support you.

luv Pollx

Hi, it is a difficult thing to come to terms with, when our bladders misbehave, I know only too well.

Before catheters are tried, there is medication which can stop your bladder being so sensitive and voiding before you want it to.

LDN did help mine for a while. In fact I stopped the other medication.

I wont go into catheter use, as it is not what you want to hear right now.

But if it does come into the discussion, there are plenty of us here, who can advise and support you.

luv Pollx

Yes - as others have said - LDN is worth trying as it does work well on bladder control. Wish l had known about it 30yrs ago.

The urodynamic test will be handled well - so don’t be embarrassed. They like you to drink lots of fluid first - which l did but promptly wet myself as soon as they touched me. Which proved my problem was serious. l have had a SPC for 18yrs now - and it has been a god-send. Botox injections are used mainly now - but you still need to self-catheterise - which is not always possible for some.

Vesicaire is a good med to help calm down bladder spasms - as it is usually the muscle spasms that cause the lack of control.

Amitriptyline at night also helps. lt is given to children who ‘bed wet’.

So something can be done.