Well I manged to do the urodynamics test, I was a complete mess but the nurse & Dr were very good and did all they could to put me at my ease. There were parts I did find painful, very embarrising, and several puddles, it took about an 2 hours including talking over the results.
They found I had both severe stress and severe urge incontence . So I asked the question “is this connected to the neurological problems I have been experiencing?” The Dr answer was if I had had a stroke, parkinson disease, MS, he would say yes. As I do not have a Dx( only possible RSD as a working DX) I would need to speak to the neurologist about it, as he knows nothing about RSD.
I have been put on Detrusitol XL 4mg one a day and will here from the continence nurse to arrange physio shortly. He wants to get the Urge IC undercontrol and then maybe consider surgery for the stress IC in the meantime, give up caffeine, lose weight & Physio.
Then later in the day I get a call if I can come in to have botulinum injections in my leg to releve the dystonia in my foot. So later today that is where I will be.
I would be interested in what physio would involve & also if anyone takes Detrusitol XL