Botox really gave me a new lease of life ! No more urgency,no more incontinence,could empty my bladder fully (you will have to self cathaterise but thats easy) and I could drink and hold more than half a pint of beer I had it done in Nov '11 and its just wearing off now so Im waiting for my next lot in the near future. Hope it works for you as well as it has worked for me.
it sounds great, im very excited of the possibilities!
if you dont mind saying, can you share some examples of how frequent you were before and afta the inections, same with control and urgency
do you ever have incontinence accidents since having the injections?
has your other ms syptoms being affected at all (good or bad) by the botox injections? particularly mobility/walking?
my continence is very poor - passing urine every 45-90 minutes , when i need to go i HAVE to go, urgent, leaking uring all the time, sometimes more if i dont make it to the loo in time, every night i have bed wetting,(does this improve)
For me urgency was always there,not always a desperate need to go but I was always aware of needing to go and I would be incontinent most days,not a full emptying but enough all the same. Since the botox I’ve had no urgency at all, in fact it is only now 16 months later that I am getting the feeling of needing to go but certainly no urgency.
The botox hasn’t made any difference to any of my other many symptons,but my legs were a bit more laboured after the procedure for a couple of hours but that may of just been me and certainly may not happen to you. It gave me a new lease of life, hope it does the same for you
if you are now not needing to go. how do you know when your bladder is full and needs emptying?
About self-cathing, have you tried instead just pressing firmly on your pubic mound with your fingers, i’ve done this for years and it empties my bladder fully, although it does take 10-15 minutes to fully empty, not one stream
How often (in hours) would you say you empty your bladder every day? do you always just self cath to go ?
If so, how do you protect against getting infections? i read UTI’s are very common in those who self-cath
I cathaterise 4 times a day,around every 4 hours but nothing set in stone, you may still feel the need to empty but without the urgency. I take cranberry tablets for utis after going through a plethora of antibiotics to keep them at bay to no success and havn’t had one since starting them.
I have had botox for incontinence three times already and it is the best thing I have ever had for this problem. I used to take tolterodine for about 20 years which used to make me feel quite sick . I had kidney stones and my consultant recommended I try botox. This was before I was DX with MS. I have an appointment for another treatment in March. It lasts for about 9 months with me and go to the loo about every four hours. Used to go about every 30 mins or so before and used to leak all the time and could never get to the loo in time. I have not had to cath at all, although I was taught just in case. It does not seem to affect my MS in any way.
Hope all goes well for you and think you will feel a lot more comfortable and happy.
sue, its nice to know not everyone has to self-cath, im hoping as i am able to fully empty my bladder using my fingers by pressing on my pubic mound, that self cathing wont be needed.
Ricky & Sue & others who have had the injections, what measurement were you giving of botox? i read the dosage is 200 or 300 units
following the injections were you given a short course of antibiotics to protect against infections?
would be great to here others experience with botox injections
Sorry but I have no idea of the dose that I had. I was given a course of antibiotics to take after the procedure though. Your urologist will advise you on what the best way of emptying your bladder is but if you can still do it with your pressing method then happy days !
as there is a 4 month waiting list at the hospital that recommended botox, i will try a different hospital that do the botox injections for the bladder
thanks for the info, glad this is finally some hope
others, feel free to share your experience & results of botox injections if thats okay
I am due to have my first botox injections tomorrow,
Is there any advice/tips from those that have already had the bladder botox injections
Anything i should or shouldn’t do after i’ve had the injections?
I normally press my ‘pubic mound’ to empty my bladder, is this still advised post injections?
I will ask the Dr when i have them but its always good to from people who have had them first hand
Tomorrow I will have my first BOTOX injections into my bladder to treat my overactive bladder
I was hoping to hear some advice/tips post-injections, from those that have already had them
Anything i should or shouldn’t do after i’ve had the injections?
I normally press my ‘pubic mound’ to empty my bladder, is this still advised post injections?
I will ask the Dr when i have them but its always good from people who have had them first hand
You should see a different urologist that performs the botox injections, as from what ive read of others experience, it works!
I had the injections ths afternoon, it was fine, lasted about 10-15 minutes, no pain just slight discomfort when i was injected 30 times, but it just felt like little pricks, nothing painful,
the dr said it will take approx 2days to take effect, will update in a few weeks
hi . I suffer with the bladder muscle going very tight when walking ( in my case waddling ) causing extreme urgency in urinating . also my trousers always fells like they are pushing on my groin area resulting in the feeling . does anyone else get this problem and if so did the botox injection stop it ? Duane
hi folks . when I am waking I find the spasticity that I get in my legs seems to hit my bladder causing urgency for loo . also I get the feeling my clothing is pushing against my groin again bringing the urgency on . does anyone else have this issue and is so did the botox injection work . Duane