Hi everyone, hope you are all as OK as you can be. I haven’t been here much recently, have been having a bit of a bad time. I saw my MS nurses on Monday (yes I have 2, not really fair when a lot of people don’t have any at all!). They were quite surprised how much I had deteriorated since the last time they saw me (about 6 months). My leg would not stop juddering all the time I was there. When I was talking about my incontinence, they decided to refer me back to the continence nurse with a suggestion that I might benefit from botox and self cathetirisation. This shocked me. I have heard of botox being useful,but don’t really know much about it. Has anyone any experience of this?
I was in a bit of shock after my appointment, especially when they said they were putting me on the urgent list to see the neurologist, they want to see me again in 2 months, and they also mentioned that I might now have moved to secondary progressive,which made me cry. I think I am still in a bit of shock, just typing this is making me well up!
Please can anyone advise me?