Anyone else get this I have PPMS. lately I can pee fine in the day no issues, can pee fine.
Come night time especially waking around 1 to 2ish, i cant go even though i want too, i have to sit for ages and ages and manage to shift a bit then go back to sleep. once i wake up again i can go again, what the hell is going on. It is disturbing my sleep and making me feel frustrated.
I have tested for UTI all clear. Lately my PPMS and mobilty has got worse and worse, and i am more constipated too. I feel so fed up of this. I mention it to doctor they just check me for UTI, and thats the end of it. surely this cant be normal or is it?
I’m the opposite I retain all day then wake up early hours for the mother of all wees 
i assumed it was ms related I have a lesion on my neck which can irritate a nerve that controls the bladder.
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If you have an ms nurse I’d give them a call. They should have access to a continence nurse, and they are phenomenal.
I’m no expert, so these suggestions don’t come from anywhere reliable but have you tried drinking half a pint of cold water before getting on the toilet? It’s something that the district nurse gets me to do when they change my catheter and they need to see urine flowing. Normally it gets things moving in about five or 10 minutes. I tend to find my GP isn’t the best for advice with anything to do with MS, sometimes I know more about things than they do, but I guess the G stands for general so maybe I shouldn’t be surprised:)
They’re also the best for constipation as well, and often if I’m constipated it plays havoc with my bladder. I buy laxido from the pharmacist on the recommendation of the continence nurse, I’ll have one sachet five times a week to keep me going otherwise I could go two weeks without a motion.
For the first couple of years after being diagnosed I used to wonder why my was obsessed with asking about my blood and bowels, but I get it now!
Good luck with it all
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It’s probably the constipation that’s making it more difficult to pass urine. To you take any bowel meds, you could try a softener like docusate it’s very gentle and make sure you’re eating enough fibre. I’ve suffered with IBS for years and since being diagnosed with MS it’s exacerbated my bowel function, but I’ve found since starting a DMT it’s slowly making it easier to pass. But being constipated makes it more difficult to pass urine, or fully empty your bladder.
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Hi there. I have experienced some of what you describe but not at night. I used to travel a couple of hundred miles to visit my now deceased Dad. Whether on a train or in the car I would feel the urge- need to pee but then find it difficult. It’s became a bit of a nightmare travelling down motorways and having to stop at every service station to try and empty my bladder. Same when I went to a bladder clinic and was asked to go and empty my bladder - something just tightens up , muscles constrict. I’ve since discovered that if I first take a deep breath and then relax my body , experience the process of relaxing while slowly exhaling, the process of relaxing somehow relaxes the bladder muscles and I can pee.
Also, as @cymroglyn and @animali say, constipation causes me problems with peeing. Constipation isn’t a big problem for me but I do eat good old prunes every now and then and occasionally take Dulcolax.
I hope you manage to resolve your difficulties- I know how these things can cause havoc with daily life and especially going out, journeys , trips to the shops etc
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