There are a few posts about stress and MS that I’ve seen, and having just moved house myself I’m convinced there’s a link… But enough about that… For the past 2 weeks i’ve had a tingle in my leg… For the first few days it wasn’t altogether unpleasant, just a bit strange and a bit itchy, but then it developed into a series of painful sensations. At first it felt like I’d been running on hot tarmac, and the bottom of my foot felt raw, painful to walk, painful when I moved, standing and with my foot up. This then turned into a sensation I can only liken to having chilblains… After this an intense heat sensation where it feels my leg, up to my knee, is permanently sitting in a bowl of boiling water.
My nurse has said that this is background MS, but I’m just scared this is going to happen lots… I think if I was told it was a relapse I could deal with it better as I know its going to go…
I’m just wondering if anyone with RRMS has had this before? Is this something I just have to get used to? Its scaring me as its the forst time I’ve really been affected in terms of what I can do… Even my optic neuritis didn’t leave me feeling so stuck.
Can anyone offer any advice? Is there anything I can do to ease the pain?
Thanks I have more questions now… I know everyone’s different, but how oftern do you get this? Is t permanent? Does it ever get better for you?
I’m not on any neuropathic pain killers… It’s the first time I’ve ever had pain… I didn’t think it would happen this soon… I’m really lost with what to expect from this… I’ll look up the double base cream and the pain killers through. Do you go to your GP for that or your nurse??
I’m just scared this is going to last a long time and I’m not really sure what to do… I tried paracetamol yesterday and it did nothing… I don’t really understand the pain. Why don’t normal pain killers do anything?
Thanks I have more questions now… I know everyone’s different, but how oftern do you get this? Is t permanent? Does it ever get better for you?
I’m not on any neuropathic pain killers… It’s the first time I’ve ever had pain… I didn’t think it would happen this soon… I’m really lost with what to expect from this… I’ll look up the double base cream and the pain killers through. Do you go to your GP for that or your nurse??
I’m just scared this is going to last a long time and I’m not really sure what to do… I tried paracetamol yesterday and it did nothing… I don’t really understand the pain. Why don’t normal pain killers do anything?
This tingling,burning sensation is fairly common in MS-I suffer from it too. It can come and go-sometimes I don’t get it for a few weeks then it will come on for no apparent reason last a few hours or days then go away again.
There is medication your GP can prescribe I take 25mg Amitriptyline(which is an anti depressant-but in much smaller doses works for nerve pain) which helps. If you have a MS nurse call her and explain your symptoms and she will give you advice on other meds too and will fax your GP.
Unfortunately normal painkillers like paracetemol don’t help with this sort of sensory pain you need painkillers which target nerve pain.
I’ve emailed my nurse today and she’s going to call me this afternoon to talk about it. I’m not quite used to having this support yet as I’ve only had her for a month or so and I’m not sure what to bother her with!
It’s good to know I’m not alone, but I’m still worried I guess… Do you just get it for a few days, or does it ever go on for weeks? I’ve had this now for 2 weeks and its just really getting m down… Slept really badly last night and I feel like I want to pop!!
I’m loving this weather though, it definately helps when its sunny and you can sit outside
Thanks both for the replies… It really means a lot
I’ve emailed my nurse today and she’s going to call me this afternoon to talk about it. I’m not quite used to having this support yet as I’ve only had her for a month or so and I’m not sure what to bother her with!
It’s good to know I’m not alone, but I’m still worried I guess… Do you just get it for a few days, or does it ever go on for weeks? I’ve had this now for 2 weeks and its just really getting m down… Slept really badly last night and I feel like I want to pop!!
I’m loving this weather though, it definately helps when its sunny and you can sit outside
Thanks both for the replies… It really means a lot
Hopefully you will have spoken to your nurse by now and got some reassurance. I know what you mean about not knowing when to call for help as it is all new to you but that is their job.
I am pretty sure it will not last for ever with you it will go and maybe come back again. I often get it if I feel stressed or have done to much. It’s like a reminder that yes I do have MS.
Like you I feel better when it is sunny and warm-the sun his only just come out here today,grey and misty this morning.
Pm me anytime if you have any other MS worries I have had it( RRMS) now for 17 years but still mobile and doing ok or use this forum-it really helps to get others advice and support.
I just thought I’d put a little update on here. I spoke to my nurse today… She called my right at the end of the day as she’d wanted to have a chat with my consultant… Judging by what I told her she’s pretty sure its a “sensory relapse” (well done Carole!! ), and she’s talking about steroids this time (because its affecting my coordination and balance - forgot to mention I fell into the compost heap the other day!!), and potentially a different course with medication… I’ve yet again got to wait and see what the consultant thinks, though my nurse did say that she’d make a decision if she doesn’t hear from him tomorrow and try to get me sorted It’s so good having her support as well as all the support you get on here… It makes everything seem better… I was totally stressing last night about it all but feel a bit lighter today.
Thanks for the replies both of you It means a lot xxx
Cathy, I’m really pleased you’re doing ok after 17 years!!! That’s awesome xxx
I have more questions now… I know everyone’s different, but how oftern do you get this? Is t permanent? Does it ever get better for you?