Hi everyone ,
I have RRMS and am suffering from odd sensations in my legs. I get a tingling crawling feeling in them and they ache as if I need to stretch them . Its not exactly painful but highly uncomfortable although it doesnt affect my mobilty . I have had one doctor tell me its nerve pain and another saying it isnt so Im very confused as where to go next ! Has anyone had similar experience and have any advice please ? thanks
Hi, oh yes!!! Got it in my arms now as well. Been put on Lamotrigine 100mg for it. Do you get it worse at night? I have hell sleeping with it. Is it ms docs youve seen? GPs havent a clue, no disrespect! Ill be honest took a lot of pestering the MS nurses at first. It is highly likely to be nerve pain. Only way I can describe it is like someone has lit a fire in my limbs, gets really painful at times. Hope this helps, go see the MS team, they do understand better than GPs good luck Tracey xx
Thanks for that . Yes , it was Gp I saw and I find it so hard to explain the sensations sometimes and feel they dont have a clue what I mean. One of my legs visibly twitches as well and at night yep , its worse. I also kick out as i fall asleep and cant control it . Sorry you have similar symptoms but it is helpful to know others " get " what you are feeling !
Bumps38 I too suffer nerve pain in my legs, feels like someone is shoving red hot pokers up them, i also get RLS and kick out which in turn gives me cramps in my feet not the most pleasant thing is it. My GP is brilliant and always seem’s to understand my explanations of symptoms, she does a lot of reasearch on MS as she has a number of patients with it.
Bambi19 - do you take any medication for it that helps ? My GP seems to want to let my consultant decide what to do but you know how long you have to wait to see them!!
Your symptoms could be due to spasticity. Muscles twitch and feel tight, and you can kick out too. Baclofen can be helpful for this. Nerve pain is more burning I think.
Regards
Moyna x
I take Gabapentin but it dosen’t seem to help. Doctor has reffered me back to my Neuro to be seen urgently, due to all the other problems I’m suffering at the moment. That was last Friday when she faxed her and my appointment arrived today. Go to see her week tommorow. Sue x
I have suffered from pain since my first attack , my legs are the worse like burning fire but my arms hurt to. I have been given amtripilyn but I’m only on a small dose at the moment. Its definitely at night time and is worse if I have walked in the day.this is making me to scared to do anything . does this ease or once you have this is it always there and how does anyone manage as my ms nurse thinks I need to do more and work through it. Thanks