Does anyone else have this? its been happening for a good while and i just ignore it usually, but recently has got worse and more noticable, its almost like an over whelming feeling where you jerk and stretch, a bit like someone with touretts with a physical tick its often pain ful afterwards , although some are milder than others.
I don’t get jerks as such but I often get awful sensation when I have to move my leg (happens different sides never both at once). I can’t decide if I voluntarily move my leg to alleviate the sensation or if my leg moves involuntarily at the end of the sensation. It’s a slow, twisting, stretching movement so not a jerk, I consider a jerk to be a quick kicking of the leg or flinging of an arm. This can go on for a couple of hours or more mainly when seated although if I have to stand for any length of time ie in a queue it can happen to a lesser degree.
My entire body jerks every now and again. Don’t know what causes it, no warning just one big spasm which then goes away. It doesn’t cause me pain or anything so I don’t bother with it but if someone could explain it I’d be interested to hear. I don’t suffer from muscle spasms like many of you but sometimes my fingers or legs will develop a tremor. I can’t have muscle relaxants like Baclofen as my Neuro says I’ll lose my mobility as I rely on muscle spacticity. Isn’t ms a funny illness?
Hope you all have a good day, weather is gorgeous today in the Lakes. I’ve got to go for my Pneumonia jab today, stupid time of year to have it methinks but who am I to doubt the doctor??
your right a bit like struck by lightening, at first i thought restless leg syndrome but its more than legs its arms face in fact any part of me but usually i feel a weird tired floppy feeling first and its as if im trying to jump back into life…can’t really explain it but its been bad recently.
Being home alone every night is enough to make the mind imagine all sorts. My legs kick, but I’m not sure why. Usually when I try to stretch. It causes trouble. It’s quite bad at times. Especially if I catch the floor. Staying positive helps. Be good & stay happy Pat. Watch out for lightning.
The jerks tend to come after I’ve been sitting still for a while and I make some gesture to moving. So lightning does strike twice or three times or a thousand etc. My wife usually says “It’s all in the best possible taste” as my legs flail involuntarily through the air. Seymour the cat chooses to temporarily leave the sofa.
For me its like a shudder it comes over my whole body and i end up in a jerking stretching clenching spasm, even my face is affected… My mum always used to tell me when i was young that if you pulled faces and the wind changed you’d stay like that…do you think its coming true???
do you think its part of the ms? as you know still not sure what I am who I am still in fraudland just keep watching myself becoming deeper in the mire so to speak, " it is what it " Lee husband says… I think its floored me a bit having the ot come up and want to widen all the doors and make it accessable… I’m managing to a point crawling walking falling and trying to embrace it all and be joyful for what iv’e got but still fighting it at the same time… its funny I went on the train again yesterday and there was man sat near me in his powerchair, he was lovely we stuck up a conversation he’d been in a chair for 23 years he’d fallen 14 feet and badly damaged his spine, he was so up beat and cheerful and about a similar age to me…he said it would get easier and that now he doesn’t even think of himself as disabled…this low self esteem thing takes some beating doesn’t it.