I had ON last October and subsequent MRI showed suspicious lesions. Was then discharged by neuro in Jan with a view to returning if anything changed.
Had some continence/frequency/urgency issues for about 7 weeks in Feb/Mar so GP referred me back to Neuro and I see him on Monday.
The bladder issues have largely eased off, although still having some slight continence issues and don’t seem to be able to ‘hold it’ for any length of time like I used to be able to.
Anyhoo, the reason for my post is that other symptoms have been particularly noticeable this last couple of weeks. Numbness in my toes and pins and needles in my feet. Buzzing sensations in legs and feet and occasional stabbing pains in fingers and toes. Also, wet patch feeling on my right thigh.
Has anyone else experienced an increase in some symptoms prior to a neuro appointment/specific treatment or appointments you have been waiting for? I mean, could this just be because it’s on my mind and I am hyper-aware? Could I be imagining it? The thing is, I actually feel a lot less scared this time around. At least this time I have had some time to digest things. The last time I saw him, I had basically had ON dropped on me like a comedy Acme anvil! I didn’t see it coming and was petrified. This time I feel prepared.
Have been sleeping a lot lately too. I slept for 4 hours last Sunday afternoon and was still exhausted. But how do you know where the line is between a weekend afternoon snooze and genuine fatigue? At the time I could barely keep my eyes open, but am I just lazy? I am always tired, but could that be the beginnings of MS?
Sorry for the long post. As you can probably tell, re-emergence of these symptoms has me focussing on them, which doesn’t help. Should I mention these symptoms to the neuro (I did mention them last time, so they’re not new - just increased).
Thanks in advance to anyone who has read this far!
tell him your symptoms, your increased fatigue etc and let him decide? He might want to do another MRI, but if your GP has re referred you then clearly a medical person is concerned enough to do something about it. Its hard when you havent got a concrete diagnosis, but the only way to get one is to be seen by a specialist and undergo tests.
I was worried about the same thing - I had been to a neuro a few years ago, with weakness and fatigue and was dismissed as fnd. When I had a bout of Optic neuritis in Dec, I was referred to the neurologist, who I saw in March. In February I had lots of sensory issues start - electric shocks, cold water drips, warm patches etc. I felt really anxious about saying all of this because I didnt want them to suggest I was “overworried” but the neuro was really fine and wanted to know everything. At the end of the day, you have confirmed demyelination, so any further symptoms will be (and should be) taken seriously, even if they turn out to be nothing.
Also the tiredness sounds like fatigue to me, but just explain it to neuro like that and they will understand.
I know what you mean about not wanting the neuro to think you’re overworried. The reason I left the bladder issues for so long, was because I didn’t want the GP/Neuro to think I was running to them for every little thing!
Thank you both for you replies, I will definitely speak to the neuro about the current symptoms and he can decide whether it’s important or not
