I’m in the process of being diagnosed with MS at 28 , I had a MRI on my brain and spinal cord and they come back with lesions and saying i definitely fit the criteria for MS ,(Possible relapsing kind).I’m due to see a professor on 2nd march. But in the mean time I just wanted to ask. Is it common for someone with MS to have pain in their back nearly everyday , ranging from okay , to painful other days? The pain is that bad it causes me to have dizzy spells and feel really fatigue. I also get a burning feeling in my legs ,but not warm to touch , aching in my arm and both legs, more so on my left side , and aching around my groin area sometimes , and neck aches , I’m all new to this so just wanted to see if this is normal day to day feeling , they have prescribed me gabepentin in the meantime to help with the pain. All new to this forum so apologise if I’ve not posted correctly. Thank you x
Hi Nik, yeh, back pain is a very common MS symptom…as are burning issues. I`ve had MS 22 years and a variety of pains along the way…including agonising back pain. My GP kept telling me to take paracetomol the clock round. Sometimes paracetomol with caffeine helped. But I very recently got a new back support cushion for my wheelchair and hey-ho!! The pain has gone. Although you might not use a wheelchair, I still think it is important to check posture and support anyway. Bouds xx
brought back memories Bouds, of when it all started. apart from other things sitting at work and suddenly having the most excruciating back pain never had it before like that in my life and never since. I thought i was going to die with it.
then it just went. I mean what was all that about lol. I do get odd back pain now but i know its down to AIDS i use and posture.
its worse if i use a wheelchair.
xxxxx
I have experienced all of the above. the burning sometimes i feel like i am on fire. mine is left sided.
I was finally diagnosed after 16 years with PPMS, lets hope you get answer soon but every time i went for results i thought this is the day and it wasnt it was just GROUND HOG day lol.
welcome to my life. is my answer to you. xxxx i hope it isnt though. Maybe something else. xxxx
So,I woke up & couldn’t stand, the more I tried to stand the more walls & objects I ran into. Then, the next morning, I woke up with hives in my face, neck & chest. Not sure what to think of this.
Hi, I’m not sure if I’m in the right area, just joined so bear with me, just saw GP and she thinks symptoms could be Ms, I’ve got double vision, muscle twitches, swallow problems and falling around like I’ve had one over the 8. I’m 67, 18 in my brain tho, and she thinks it’s late onset MS. I had MRI to see if I had stroke about 2 years ago cos I had some of the symptoms of one but there was nothing on the mri. Would MS have shown up then If it was MS? I can’t sit and worry about things that haven’t happening yet and my sense of humour will remain thru out no matter what. But does it really take years to discover if you have MS? Sorry if this is all a bit scatterbrained but I have only just found out and my head is whirling. Your relieved to find this forum mate Pauline x
Hi Lily, I`m 67 too and my sense of humour keeps popping up! Things started going awry when I was 45. My earlier MRIs and LPs didn’t tell my neuros anything. My clinical presentation was very PPMS like and I was a full time wheelchair user within 2/3 years. It progressed rapidly. I got a partial PPMS dx, in 2003…then a different one altogether some years later…which was discounted again after tests for it were negative. I finally got the diagnosis of PP Spinal MS in December. I went to a neuroscience specialist centre in Liverpool. I have lesions/demylination only on my spine…brain is clear. Neuro says it is very rarer and I am only the 2nd person he has seen it in! Bouds x
hi lily yes it takes years if your born around 1951 welcome to my world lol. first symptom 2000 diagnosed 2016.
Hi hives can be down to an allergy. Have you taken any meds recently you dont normally take or supplements?
I would see your GP because hives is not normally an MS thing.