Today I went for my lumber puncture. I had a clear brain scan, but my spinal was inconclusive. I saw a new neurologist a fortnight ago and after examining me she said she wanted all my tests redone and done together. Today I spent 11hrs having from my head to my pelvis scanned and a lumber puncture. After I had rested from the LP I saw physio and another neurologist who checked my strength as my new neurologist had done a fortnight ago and physio. They also asked when I’d started struggling to swallow and how often I am falling and dropping things. I dropped a cup in the hospital and my phone. I drop everything. About an hour later my neurologist returned and said they’d agreed they’d all like to review the scans and results from today together and I will have my result by next week - however they are concerned that my initial neurologist has over looked the possibility of MND and that is something they aren’t willing to diagnose or not diagnose on a whim. I feel like someone has floored me. Has anyone else experienced this? My husband is broken and saying he can’t cope and my mums being irritational and telling me it all adds up. I’d just got my head around MS but now this?! I can’t process it and my kids keep asking why I’m crying. I feel so scared.
My son is having blood tests today as the start of a process which might determine whether he has or doesn’t have MS. What are the tests called please?
Hi ,
im so sorry you’re going through this. I can’t imagine what a nightmare this must be for you & your family . The diagnosis process , as you’ve probably gathered (for any condition) involves a lot of testing , scans etc. I suppose it’s a comprehensive elimination procedure that the doctors have to go through.
I hope you have a good support network that you can talk to , to help you through this frightening time. Please take care , you could try calling the MS society helpline , or an organization such as the samaritans for some professional support and counseling.
Hello sweetheart.
This diagnosis process can be so frightening and wearing…on all the family.
It took 22 years for me to get mine!
As awful as MS is, MND brings a new set of worries.
I`m crossing my fingers for you.
Boudsxxx