Am 99% certain I have MS, neuro’s letter to my GP mentions demyelination evident from cervical scan etc. Am having lumbar puncture on Tuesday, having had two MRIs of my head last week (one with contrast agent). Main symptoms are drop foot, difficulty with balance and lack of fine motor skills and coordination down my left side. I walk with a limp and find it hard to use cutlery in my left hand.
Just felt like getting in touch with others who suffer from the same, as I’m feeling very nervous at the moment. I am an otherwise healthy 42 year old who goes to the gym 4 times a week and used to run lots, including marathons; have not been able to run for the past 4 years as I just kept tripping over and injuring myself.
I’m a glass half-full type of bloke and don’t want to get all maudlin, but really need to communicate with others who might know how I’m feeling. In particular, I’m becoming increasingly paranoid about every sensation in my body. It’s as though my insides have been ‘invaded’. Is this normal?
Not looking forward to Tuesday, but hey ho.
Any advice as to how to inform my children of the MS (they’re 7 and 10), if and when it is officially diagnosed, would be much appreciated.
Stay strong all.