Hi guys, have been to see the neurologist on Monday and have been told I’ve got to go for a brain and spine scan, truth is am so scared, my right leg from the shin to my toes has been numb since October and now have difficulty walking and extreme pains and left leg is now painful, I’m thinking it’s drop foot and I’ve read the posts about other symptoms and all the jigsaw pieces fit together for MS chronic fatigue, back muscle spasms, weak limbs for years was told the tiredness was because I was ‘depressed’ but was down because I was so tired and couldn’t function, I know no one can say yes sounds like MS as also read its hard to diagnos but am soooooo scared and don’t know where to turn am trying to hold it together as am a single mum of 2 children but really need someone who has been there and living it to listen.
Hi there, i know how you’re feeling, its true that some people take a long time to be diagnosed but others like me are diagnosed very quickly…sometimes the MRI and pattern of symptoms clearly point to MS, i know its a scary diagnosis, the MRI itself is strange and a wee bit noisy but nothing to be scared of…take someone with you for a bit of moral support. I didnt have a clue about MS when i went for my scan…thought i had a trapped nerve or something so the neuro appointment for results was a bit of a shocker as i went alone on a break from work.
Im also a single mum, its difficult but thinking positively is a good thing for yourself and your children…if you ever need a chat give me a shout.
cat x
Thanks Cat, the neurologist thinks mine isn’t a trapped nerve as not showing other symptoms, will be good to speak to people in it as friends think I’m daft thinking its MS but I know my body and as I said its like it all falls into place, can I ask what your signs where x
I had loads of sensory symptoms, woke up one morning and couldnt move my arm…like i’d been lying on it but took quite a while to feel normal again, i’d had lots of strange crawly and pins and needles feelings, they did initially think i had carpal tunnel syndrome which is why i really wasnt worried, i went through a spell of dropping things…little boys dinner etc…as i felt like i had a hold of things but obviously i didnt. i also had what i now know is l’hermittes sign, a strange electric shock buzzing feeling from my head to my feet every time i put my chin down to my chest, also a feeling as if i could feel all the blood running through the veins in my legs when i walked. It is a very difficult and confusing thing to describe. I have had very good recovery from the symptoms although they flare up sometimes then go away again. MS is something that is very individual to each person and there are so many combinations of symptoms…i actually felt daft talking about it with friends as i just couldnt describe what was happening to me…but i do wish i had told more people to start with, taken the extra support and been less stubborn haha x
Yes when friends can’t see a symptom think its hard for them to understand, yes my legs have been like shaky and as if the blood is cold and can feel it pumping all very weird, I have read that there is lots of combinations and each is different, I’m willing to take advise as I too can be stubborn but know I need to listen and take help when offered and needed, thanks Cat really appreciate you taking the time to answer me x
No problem at all, it is hard and i know all the thoughts that cross your mind when you have children too. Best to wait and see how your MRI and results go…its a bit of a waiting game but its not a definite yet. Its not always as bad as you think it will be, i was diagnosed 5 and a half years ago when i was 25 and i still work full time and look after my boy myself.
If i could go back a bit i would be less stubborn…in some ways it helped me get through it and in other ways i think maybe putting it to the back of my mind stopped me accepting it as quickly.
Where are you from Michelle? x
Yes Have to say the waiting game is hard but this site is good to share worries and concerns, I’m from Derby in the east midlands, I’m lucky in a way as mine are grown up well my daughter is nearly 15 and my son 21 x
Fingers crossed it will all go well for you, my little boy is 10…he knows the diluted version and although he asks questions i think hes a bit too young to understand it all. Its good your children are a bit older and yes this site is a good place to share your worries and concerns and maybe get a better understanding to put your mind at rest x
Thanks Cat really appreciate your advise and will keep coming here till I know for deffo as its all good information and helps keep spirits up x