Hi everyone, its my first time to post but all sorts going through my head! I would be so grateful if you could read my post and I would appreciate your thoughts. Thank You. 11 years ago I was diagnosed with optic neuritis after my first child was born. I also developed Trigeminal Neuralgia and restless legs and arms (both still ongoing and getting worse). My GP suspected MS so had the usual tests done and thankfully all clear. I was prescribed meds for my TN and restless legs and arms, both of which only had to be increased in the last 6 months. In February gone by I woke up during the night with a numbness/coldness in my head. The next day I had a numbness in left side of face (opposide side to my TN). Then a few days later developed numbness in my left arm and leg and still getting bouts of numbness/coldness in head. The numbness in left leg is more pronounced when taking a shower. Also have been getting tingling and tightening around my rib area. A few days ago I developed a hand tremor while holding a fork, couldn’t stop my hand from shaking but am fine since. Yesterday got pins and needles in both feet and left hand. My TN is also flaring up and the moment. I also get itchy burning feet in bed which may come for a week or so and then its gone for another few weeks. I finally went in to my GP who did a neurological exam and found hyperrelexia in upper and lower limbs with clonus. She said the signs are worrying of MS. She sent me to A & E where they did a brain scan and it was clear. I am waiting on appointment to see a neurologist. I am hoping he will do a spine xray and a lumbar puncture. I also have balance issues but only when climbing stairs, need to hold on to the rail etc and concentrate where I am putting my feed. I am also very sensitive to sudden loud noises where I shout out of me (unintentional) and its like a shudder goes through my whole body. Would be very grateful for your thoughts. One minute I am thinking it has to be MS, next I’m thinking maybe not.
Thanks agian xx