Thank you Tina, I really do feel relief it’s not Ms, obviously I’m disappointed I haven’t got answers, but it another thing crossed of the list x
i also have felt not believed, which is hard to deal with, but it is also hard to get the "correct diagnosis " when symptoms are so random, so test after test and constantly being negative may be frustrating, but it’s also eliminating things, unfortunately that is the only way to get answers even though it’s long winded.
this process is an emotional roller coaster…test, worry, results (relief), then repeated.
my pain levels have increased stupidly in my back, legs and feet, I am near enough housebound, but I’m here, I’m alive, and even though in pain, I’m needed by my kids x
im a researcher and I have learnt so much through this journey, positivity is key, your up, your down, but when I’m having a bad day/week, I try and think tomorrow/ next week might be good x
i have dr’s appointment on 10th so I hope to update on next stage…,who knows the likelihood of someone suffering the same as me is highly probable, and maybe once I get a correct diagnosis I may in turn be able to help someone.
even though I haven’t got ms…I know how a lot of people feel as my symptoms experience is similar, the only thing I haven’t got is the MS life long diagnosis, which I do believe is a hard pill to swallow.
There is so many strong, and compassionate people on this group,who are diagnosed with MS, who give so much help and support to others, I find this truely humbling.
amazing group, strong, determined and loving people x
heidi x
xx