I’d been having problems for about 8 weeks that eventually after many failed desperate attempts to get me seen had me admitted to hospital, after 5 days I had an MRI which has found 2 white patches on my brain.
I’m home now and have finally seen a Neuro as an outpaitent, Hospital docs are pretty convinced it is MS but need further tests to confirm and Neuro is looking at 3 options. Some of my vitamins are low so i’ve had loads of bloods taken just waiting on results and secondly Demylination and finally it just being a random brain functioning failure, which I am pretty sure they have included just because I suffer with a mental health condition.
It’s been a nightmare upto this point but I am trying not to dwell on the care I’ve recieved so far and keep moving forward. My strangth still flucuates daily although I still in general feel better than I did in the hospital. I am having at some point further MRI’s on my head and my spine (which is in agony) and some sort of eye test where they attach wires to the back of your head?! and possibly a Lumbar puncture. I am back to see the neurologist in approx 12 weeks.
Ive been lurking for a while but not posting so just thought now I am feeling a little better I’d pop up and say Hello.
the eye test sounds like an evoked potentials test where they check how long it takes for your brain to recieve a signal, I’m having my first one next week
The evoked potential test is nothing to worry about - it’s the only test I’ve had where I was invited to sit in an armchair and look at a TV! Sadly there was no programme on the TV, only a moving pattern to watch but it was not at all psinful and was the nearest any medical test has ever got to being fun!
Morning all, thank you for the replies. I have finally started to get paperwork through the door for tests. I am off for my Evoked Potentials either this week or next I have forgotten eep! I’ve also got paperwork for my big set of MRI’s with contrast. On a Saturday night at7pm what a way to spend a Saturday! I’m still off work and very bored/starting to feel quite low to be honest. Not really sure what to do with myself.
Ugh, 7pm on a Saturday for an MRI?! Oh well, it gets it over and done with.
Being off work is time to catch up on my reading (I always have a backlog of magazines and there is something like 40 books in my “unread” list on my kindle) and my crafting (mainly cross stitch). How about taking up a new hobby? Now is the time to learn that language or try that craft or whatever. Or set yourself a challenge: perhaps find one of those lists of ‘books every well-read person should have read’ and challenge yourself to read everything on it?
