I have a couple of questions if anybody could possibly answer them please
I have posted on this forum in the past but for some reason, cannot find the thread, I may have accidentally deleted it, I cannot remember, apologies if so (brain mush!)
I will try to be very brief: I am a mid-40s woman, diagnosis of fibromyalgia but symptoms have been mainly neurological, dizziness, unsteadiness, tingling, visual disturbance, dreadful fatigue, so bad that I quit work, creeping flesh feelings ,sunburnt skin, now got double vision on looking left. I have been ill for about 9 years altogether but quite bad for the last 5 years. I think when I saw the neurologist, my general examination was unremarkable but my brain MRI has just come back showing some high signal intensities in the white matter and I am to have a lumbar puncture and a visual evoked potential test. I only received this letter on Saturday so as you can imagine, I have spent a worrying weekend and am feeling really confused and worried. My questions are:
- Is the Dr suspecting MS to order these tests??? This question is going round and round in my head all the time, I don’t have access to the MRI report so I don’t know where the lesions are or what the appearances suggest so I am just guessing! Arrrgh (and if it is not MS, I wonder what it could be?)
2)I am due to go on holiday in a few weeks, does anyone know if I can fly after the lumbar puncture or should I wait and have it when I come back? But that is more uncertainty and waiting! I will ring the ward and ask when I get the letter with the date but would like to try and plan things now if possible
3)Also, for example, if a person did have MS but was going through a “quiet phase” with not much disease activity, would the LP still show up positive or be negative? Does the timing of the test matter?
Thanks in advance if anyone can help ease my mind with these questions.