Hello,
I am a 41year old mom of 2 girls, i have a partner since 23 years and ms since 2010!
I stopped working 5 years ago, because it was just to much for me.
My mane problem is that i am always tired.
My partner is mad because i have no interest in sex anymore. He doesn’t understand. He thinks i do it to tease him.
We have sex 5 times a year!! I just want to sleep all the time and he hates me for that.
My partner wants to leave me, and my kids afther 23 years.
I feel very alone and sad about this.
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Hi Senti,
I’m so sorry to read how difficult it’s all got, it can’t be easy on either of you. Have you spoken to your MS nurse about it? If there’s something that can help they will know all about it. I remember going to MS life a few years ago, and one of the busiest sessions that they ran was the sex and relationships one.
Maybe counselling will help as well, see if your local MS Society can recommend somebody local to you who’s got knowledge of the difficulties of MS.
A couple of things spring to mind, if you do get an appointment with your MS about it then take your husband with you. Marriage counselling can have all sorts of negative reactions when you bring it up, but if he’s not happy either he should be able to see the benefits. I noticed the way you wrote about tiredness, saying that you want to sleep all the time. That sounds like you’re blaming yourself, because actually it’s not that you want to sleep it’s that you need to sleep. I used to get accused of laying the blame on ms four things as though we were playing top trumps and that was my unbeatable card. Which is really unfair, because I wasn’t the one playing games.
I hope you’ll be okay, be kind to yourself.
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Definitely talk to your ms nurse, mine specifically mentioned if I wanted some help with such things. It’s not just about being tired you could have nerve damage that affects your sex drive. I know numbness over my body makes intimacy hard for me. I’m 41 too with young children so I have total empathy with you. It’s hard when you’re so tired all the time and I personally struggle with feeling “sexy” when I self catheterise and groan only because I ache 
Your not alone an open conversation with your ms team is definately a good idea as well as counselling for you both 
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Hi all,
Thank you so much for your replies!
Unfortunately i am not from the UK, as you probably guessed from my English 
. I am from belgium, and i don’t have a ms-team or nurse. I only see my neurologist once a year for a new prescription.
But your understanding helps a lot! I see now that i am not the problem but MS is and also my husband!