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Possible ms?

Hi… I had my first neuro appointment today . I had an abnormal mri about 8 months ago when I was having constant tinnitus ( pulsatile ) investigated. I then had a cerebral angio as they were convinced mri problems were vascular . Angio ruled this out. I had lots of other off symptoms: pins and needles in head, hands, arm and feet as well as bottom region, no concentration or clear thinking and the most extreme fatigue. I was then sent back to gp as my tinnitus was not treatable. He referred me to neuro … Neuro I saw today hadn’t looked at my mri but saw that notes remarked on very high number of t2 hyperintensities. He has said I may have ‘possible’ ms although fatigue, numbness and pins and needles anywhere but bottom not symptoms. He also said that early diagnosis was not important in ms so I could choose just to keep going and go back and see him in a few months or have a lumbar and electrical tests before I go back and see him. I opted for the latter… I just want to know ! So…, after all that ( sorry it’s such a long post!!) I just want to know if there’s anyone who has had tinnitus as an early symptom?!

Hello Debbiemoth. I’m glad you’ve chose to persue a diagnosis, you have a right to know. I’ve had tinnitus for years but I thinks it’s more to do with a perforated ear drum but who knows :slight_smile: I hope you are coping and getting plenty of support? Take care xx

Glad you chose further tests, a lot of neuros now recommend a early DX , the sooner you start treatment to try and prevent future permanent damage. Good luck Gray

Hi Debbiemoth,

I had years before I got a diagnosis of MS. I also have tinnitus and am slightly deaf in both ears. The important thing to do is keep a list of symptoms ,how long you have had them and whether it is a new or existing symptom. Then give this to your neuro. Hopefully it will help him/her to give you a diagnosis quicker.

Hope you get your diagnosis soon

Robert.

Hi Debbiemoth,

I had years before I got a diagnosis of MS. I also have tinnitus and am slightly deaf in both ears. The important thing to do is keep a list of symptoms ,how long you have had them and whether it is a new or existing symptom. Then give this to your neuro. Hopefully it will help him/her to give you a diagnosis quicker.

Hope you get your diagnosis soon

Robert.

I am going through the diagnosis stages now and agree it is very frustrating. I have Otosclerosis and tinnitus but haven’t been told of a connection between them and the MS symptoms I am presenting. I hope you find an answer, I’ll ask at my neuro meeting as well as you have me thinking now!

lily

There is a link between my ears and my MS. In Dec 13 I had pulsating in my left ear, this turned into a vibration - I visited GP she said fluid on my ear, that week got a hemi-facial spasm.

Feb this year I had pulsating and an ear infection - GP diagnosed me. slight raised temperature, muffled hearing, pressure and fullness in ears, clear fluid drops in both ears. Also bowel and bladder service record an infecion in my urine. I had a sensitive patch on my leg for 4 weeks. I had an MRI scan 3 weeks after this infection and I now have one new periventricular lesion which vividly enhanced with contrast and 2 new non enhancing pons lesions.

Only 10 days ago I had pulsating or something spasming in my left ear, my back was buzzing/tingling for 6 days after going on a bus journey. the bus vibrations have set this off before. I had sneezing and a runny nose too (may have been hayfever).

Two days ago went on bus again no back buzzing/tingling and no pulsating or spasming in ear. I am going to keep a record and mention to my neuro.

Your neuro sounds a little behind the times: there was something posted within the last few days about the best approach being early diagnosis and prompt treatment with DMDs if appropriate. Fatigue and numbness both seem to be fairly common symptoms among people with MS who use these forums and I have tingling (the sort you get just before you get full-blown pins and needles) in one arm - it’s one of my main symptoms and was one of the things that rang alarm bells with my GP and got me referred to a neuro.

There’s more information on signs and symptoms of MS here: http://www.mssociety.org.uk/what-is-ms/signs-and-symptoms - and if your neuro was my neuro I’d be asking whether he’s an MS specialist and considering getting a second opinion.