I’m really just writing this as I want to just tell “someone”…my best friend is heavily pregnant so I can bother her and my folks are going on holiday tomorrow so don’t want to worry them. Having made the fatal error of googling my leg and arm weakness and pins and needles so many websites have pushed me to MS information sites and now I have an awful sinking feeling about my outcome. I’m going to the GP tomorrow.
I’m 42 and my ongoing health concern has been tinnitus for about 6 years - started in one ear then also the other about 3 years later. The initial diagnosis was acoustic neuroma based on a non enhancing tiny lesion in the inner auditory canal. Anyway 6 scans later there is no change and I also have bilateral tinnitus now with no odd MRI results for that side of my head. At least one consutant thinks the lesion is simply a birth defect.
About a month ago I had unbelievably shaky forearms after gardening, I could hardly hold a mug after, the shaking continued for a few days although lessening. I had a lesser episode a few weeks after after defrosting the freezer with a knive.
Just after that my forearms and hands were sore and weak daily, and still are. I told myself it was related to the gardening or maybe RSI (I use the net and laptop all the time) and didnt panic about stuff like MS. Then last week my legs joined my arms in this weakness, my feet hurt and I also get pins and needles and weird almost tickling sensations in them…a little like the blood flowing back in after being cut off. The last few nights my feet were keeping me awake.
So I googled yesterday and so my panic starts - I see tinnitus related to MS, the classic shaky/weak limbs and I can also tick 3 or 4 other boxes - all of these I’ve ummed and ahh’d about seeing the GP for some time as individual complaints
- I honestly can’t remember the last time I really slept well/refreshingly, I wake earlier and earlier - 5am today.
- My sex drive has dimished a lot over the last 4-5 years - really noticeably
- I had very fleeting/minor pain behind one or maybe both eyes for a short period - this would only happen when i pressed my head on the pillow at night to sleep, never in the day or during the morning
- I have noticeable problems finding the right words these days…I even idly googled early onset dementia this year a few times as I’ve always been so fluent.
I’ve also had IBS in the last 2 years.
I also have a really bad episode/outbreak of herpes right now so my immune system is definately suffering but I had never weeks of muscle weakness and pins and needles with herpes outbreaks.
I was putting much of the shakes and weakness down to anxiety until I started to see all these associated symptoms, anxiety has been an issue for me for years. Other things I put down to age…now I’m really concerned.
Anyway…sorry to go and thank you reading, any comments, suppot and advice appreciated.