Not diagnosed just looking for info

New diagnosis and before diagnosis
1

Hi all.

I guess im writing this as im fighting to get help with a range of symptoms. It was a friend of mine who planted the seed of MS.

I have had tinnitus for over 6 years.

3 years ago, it was believed I had costochondritis after my upper body went into spasm and frooze up for anout a week.

For about 2 years now I’ve had hearing loss and dizziness, lightheadiness, which is constant every day. I have severe headaches, and sometimes my eyes hurt.

About a year ago i started forgetting words not often but enough for me to notice and worry about it

Over the past two weeks ive had pins and needles in my left arm and left leg.

I went to ENT doctor who said he couldnt see anything wrong with my ear however sent me for mri.

Im now in the waiting period to see what it reveals.

My question is, has anyone had similar experiences, especially with the tinnitus and hearing loss? As i know, it may not be a common symptom.

Any info is really appreciated

2

Not with tinnitus and hearing loss ( I think my hearing might be declining a little but I’m pretty sure that’s to do with advancing years - am 70 in a few weeks). Dizziness a little.

3

Personally…yes but everyone’s journey with Ms is different

4

I’ve also got tinnitus, sounds like static and I’ve had it for ages. Balance problems, TN and pins and needles on my right leg and arm.
But I’ve not been diagnosed yet. My GP keeps on chasing them because she made the referral urgent. It’s been three months and I still haven’t heard anything.

5

Hi, I hope you get some info soon. Have you seen any specialist or had any MRI? I had an MRI 4 weeks ago and still havent had the results.

Hopefully we get some answers soon.