Hi everyone, I am unsure if I should be positing here but I have found this site really supportive (even though I’m in Australia)!!
I am definitely going to sound anxious and it is not my intention to bother anyone I am just at a loss at the moment, so I’m sorry I’m advanced!
In June I lost my hearing in my right ear, then it went to my left which led them to believe it’s autoimmune inner ear disease. But they have no idea what autoimmune disease. I suggested ms because my left foot goes tingly and my bladder is not fab. They looked at me like I was nuts.
Now one to be honest I have had an mri on brain and spine and all they sound on my spine is an AVM which they said has been there my whole life and wouldn’t be causing any of my symptoms so “forget about it”. The rest of the mri was clear. But now I’ve read it’s possible to have a clear mri but still have ms and basically I’m just at a loss. I was just wondering if anyone else has had hearing loss or anything like that? The doctors have just told me in “unlucky” to have this hearing loss. Thank you for all your support already! You all seem like such amazing and supportive people.