Just wondered if anyone could take the time to read my story as feeling very confused at this moment in time??
In August 2013 I woke up one morning with loss of hearing in my left ear, severe dizziness, stiff neck and tiredness. 8 months on I still have the loss of hearing, dizziness and still at times get very tired. The Stiff neck went after about 6 weeks.
I have been backwards and forwards to the doctors and eventually in October got referred to see a ENT consultant. He confirmed the loss of hearing in the left ear and sent me for an MRI. The results showed “No evidence of Inner Ear or brainstem” however “multiple high T2 signals in the white matter of both cerebal hemispheres” and that I may have possible underlying demyelination and he referred me to see a neurologist.
I decided at this point to go private to get things moving as my symptons where causing me alot of stress and upset. When I see the neurologist he said "MRI brain scan shows a chance incidental finding, deep white matter scars which could be the consequence of asymptomatic MS although I do not currently fulfil criteria for that diagnosis? I was sent for another MRI with contrast, 3 months after the last scan.
Got my results which show no change so I am now left confused as still have the symptons? I was told the lesions are all in the right places for MS but I need to wait to see if I develop anymore symptons? I was also told that hearing loss is not a sympton of MS? But I have read different?? Can anyone help or give any advice??
Hi, first off, deafness is a rare symptom of ms…I have read this from those who have it, plus in symptoms check lists. Seems like your neuro has missed that bit of info!
It can sometimes take years to get a definite diagnosis of MS. At least you are still being investigated, so I think you`ll have to try to be a patient.
I had years of tests and saw 16 neuros altogether. I was wrongly dx`d with PMS for 7 years.
Aftert hat I was messed about with diagnoses changing.
My current one is idiopathic spastic paraaresis…could be genetic, but with no evidence.
Hang on in there hun, yeh?
pollx
Thanks for the reply Poll.
I just have to wait now to see if any other symptons develop which basically means I have to live with the hearing loss, clicking noises in ear and bad dizziness 
I was offered a lumbar punchture but was advised not to have it done?
Hi - your post caught my eye because I ended up here (? MS) via ENT with not so dissimilar symptoms…
Sorry you feel confused - I can understand why but what I am learning is it seems the world of MS is not black or white on many levels.
Have you thought about going to see your GP to discuss where you are & what it means? As Poll says the diagnosis of MS only comes after several criteria are established often over time - unfortunately that doesn’t mean your symptoms go away nor should they be ignored. There may be something your GP could offer to help you - additional stress will just aggravate things.
Good luck , I hope you feel better soon & keep us posted.
C xx
Hi lou, sorry to hear about your symptoms, i went through my first episode of symptoms in june 2013 and at the time the mri showed lesions but they could not diagnose MS as they had to wait for a period of time for another MRI and tests like yourself. At that point in June i was diagnosed with clinically isolated syndrome and this is for people who suffer one neurological episode, my consultant told me it may be just that one off time or it may develop into MS in years to come but there was no definite answer. On my second MRI it did show new lesions so MS was diagnosed in January. I was told by my consultant if the MRI was clear they would have watchfully wait to see if i suffered another episode whih they class as being at least 30 days apart from the set of symptoms you already have. This maybe something you could discuss with your consultant at the hospital. I hope you fund the answers you need. Good luck sarah x