Hello everyone, I just signed up because I had something happen pretty scary during the night last night. I was dx’d 2011 with primary progressive ms and have always had trouble having regular bm’s. So after my last mitotranxone therapy one week ago my dr gave me rx for laxative. Well it worked too good, and last night I had a mess in’my bed clothes(not on bed) which required me to shower off. Sorry this is so gruesome. Anyway I did the best I could but I was in bad shape, I should have asked for help from my family (husband, 2 boys) but I idn’t. I made a mistake and forgot to turn the shower all the way off!!! Our neighbor downstairs woke us up couple hours latercompl:-) ainingof water. My family wa aWake for hours mopping and cleaning up the mess. My question to you:: hasthis happene to you?? I did not feel the wAter onmy legs or notice the water being on!!! Now my family have noconfidence inm to take care of myself at all. I feel perfecly hotyibl at themo ent, and today is mybirtjfA!!! SOme birthday!!!Thanks for listening, Vicki weinkauf
I’m not sure this has anything to do with MS, my niece (24,no MS) left the bathroom basin tap running last week - it happens! fortunately we don’t have downstairs neighbours, I did have water coming through a downstairs light (from the shower) a couple of years ago, wrecked the flooring!
we regularly have water dripping downstairs.
eldest son works from home and runs a bath and then gets absorbed in his work, forgetting all about the bath.
husband runs a bath but quite often he’s been drinking and forgets the bath.
youngest son just occasionally fills the bath too much and it comes through the ceiling.
i’m the one with ms and i only have showers and i dont cause water to come through the ceiling!
now i’ve remembered - i need a shower.
vicki - just remember “this too will pass”
we msers have to devise strategies to deal with the latest problem it throws at us.
happy birthday!
carole x
Hi Vicki, I’m sorry to hear about your ‘accident’ last night. But are you sure it’s not just a strength thing, rather than a cognitive thing? I’m finding I have - not regularly, but quite frequently - left the kitchen tap on. Luckily, so far, no flood, as the plug wasn’t in. But my water is metered, so literally money down the drain! Sometimes I’ve not realised 'til next morning. At first, I thought I must be forgetting to turn it off. But because I’ve never found it on full blast, I came to the conclusion I must have turned it off - just not properly. It seems not my grip, exactly, but my turning force is much weaker, so although I’m turning the tap, it’s not always having the full effect. Because it’s such a routine action, I’m not used to having to check whether it worked, so I tend to just turn the tap and leave the area, sometimes only being alerted hours later to the sound of tinkling water somewhere. I CAN turn the tap off properly if I concentrate, so I find, now, I’m having to be extra careful about it, and not just wander off, assuming it worked. I know it’s a bit worrying, even if it’s not cognitive, but I’m confident the explanation is physical - at least in my case. Turning the tap is getting harder. You can get levers to attach to them to make it easier. I haven’t resorted to that yet, but I am more careful about whether I’ve turned them off properly. I had a very unexpectedly high water bill last time, to the point the company suggested I investigate for leaks - at own expense of course - which I could not really afford, especially with no evidence in the form of damp patches inside or outside. I didn’t want to hire someone to look for a problem I’ve no proof really exists. I wondered how much of it might be due to me leaving the kitchen tap on, although I’d have to have done it an awful lot to account for such an increase in use, as it was nearly double. The other possibilty (which I’m hoping) is that the meter reader misread it the time before, so I got an artificially low bill - which I wouldn’t have queried. That would explain why it seems to have gone up so much. Tina x
Thanks everyone for your responses and support. It is touching & really means a lot. I wish it could be as innocent as you all describe, but I’m afraid it’s a bit more cognitively diaboliic than that. We have a shower stall & I had left the shower on. I did not feel the water hitting my legs as I was trying to clean up and traumatized by the whole situation that I just wanted to go back to bed. So I left the light on with the light on & the mop/buckef at the door so nobody would slip & fall when they came into the room. Now isn’t that pitiful?? Just look at what MS does!!! This is the UGLY face of MS, and I am Horrified!!!