Just wanted to relate what happened to others who will understand. Looking for tea and sympathy, really.
My continence routine is strict and under better control but I still have problems with this which limits my independence. So, out this weekend and you guessed it, I need a lavatory NOW.
I sped to the lav area on my scooter and tremoring so much I could not get the key out of my bag so went into the mother/child lav, the door was open and no one around. Well, no grab bars and by now my tremors are ridiculously limiting it was a struggle and I made it but what a mess :(
Then banging on the door, for the entire time I was in there which was a long time between going and cleaning up and when I came out verbal abuse from two people calling me spastic !? , getting right in my personal space, being rather vile about the smell, me, the scooter and it went on and on.
Funny thing is that I do notice that when adrenalin kicks in my symptoms are way worse so I couldnt do much except put my foot down and get out of there because my back was to them when I was backing out of the lav, I barely looked up and this is no like me. The tremors made it impossible to get my phone to call my husband who was elsewhere in the shop. I ended up crying like a baby.
I have used assistive devices for some time and I have never been abused like that before and to be honest it shook my confidence.
of course now I can think of lots of things to say but I am ashamed to admit I really did just take it and get out of there as soon as possible, they seemed so annoyed that I was a bit afraid.
Thanks for listening. Sorry about the gruesome details.