Hi all, I’ve recently been diagnosed with RRMS, I had first attack in 2007 and thought I’d got away with it all these years but here we are. Optic neuritis to right eye started in March which was pretty severe but after a blast of steroids my vision improved. I did however get what they call the ‘sting in the tail’, optic neuritis got way worse for a few days as did the what were mild symptoms to start with on my left side which got way worse. The usual suspects - numbness, unable to walk, unable to use hands properly, heavyness, loss of power, pins & needles, cold water pouring through legs, nerve pain, MS hug… the disability issues have improved over past few weeks, albeit they vary.
However the past 10 days the optic neuritis has got gradually worse again each day and wondered if that was normal or can happen? I was under the impression it got better and that was that? I know I’ll never get my vision back 100% but I could see well enough to drive and work part-time (I’m a designer). But now it’s back to not quite as bad as it was but still not great.
I know heat can make it worse, could it be the weather? I’m also not sure if it’s also starting in my left eye, I honestly can’t decide even though keep closing each eye to try decide! I’ve been avoiding being outside and using a fan loads.
Also - I’m planning on taking my nieces on holiday to the Canaries in October (I intend to go as many hols as possible while I still can) - 5 months on could that still make the optic neuritis flare up?
I’m pretty sure the rest of me is ok with hot weather as I also have Fibromyalgia and each year I’ve went to Spain or Italy on hols since 2010 I’ve been charged up like a wee solar panel with bags of energy and virtually no pain!
Any advice or experience would be greatly appreciated. I’ve rang and left a message on answerphones for neuro & ms nurse. Going to ring eye clinic in morning.
Thanks, Arlene X