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Ominous

Hello.

I’ve just been to the local hospital to see the incontinence nurse.

Firstly, it was 2/3rds of a mile in the pi$$1ng wet rain so I got soaked in my little wheelchair.

Thanks!

Now it appears I’ve set a whole chain of events into motion regarding my time and motions. The nurse was non-committal with any sort of diagnosis but I’ve been referred to the great jungle that is Pembury hospital for both urology and the bowel clinic. And I thought getting soaked was bad enough. She gave me a thorough examination before giving me forms to fill in saying that I couldn’t get pads on prescription until I’d done so.

They need to investigate a “blockage” which again, she was very tight-lipped about. It’s up to the doctor to decide if my prostate is enlarged.

I know it’s all at the precautionary stage at the moment but I’ve got fingers crossed.

At least I’ve started the ball rolling.

Best wishes.

Hope all goes well Steve xx

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Fingers crossed Steve that it gets sorted quickly for you.

Pam x

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Ooh Steve, them prostate things are a bloody nuisance. Always getting in the way. I do feel (!) for you chaps.

I hope it’s all OK.

Sue

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Positive thoughts going your way Steve. Early intervention and all that. Husband had surgery on two occasions, to “shave” an enlarged prostate. In one day, surgery second day, discharged day three. Huge sighs of relief all round after a clear biopsy. Wishing you the best of luck x

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Hi Steve,

Ignore the girls, they haven’t got any idea what it’s like to have a prostrate.

When I first started pissing in my trousers I thought, you’ve hit 50 my lad, time to get the old gland checked out. The most astonishing thing about the exam was that my GP wanted to know if wanted a chaperone. I said to the doctor, “What on earth for?”

I’m the son of a hospital ward sister and she didn’t take any prisoners when it came to invading personal dignity.

Anyway, it turns out that Mr P is fine and I only had MS. You’ll be OK too; my mum says so.

Regards,

Anthony

Oi you, Anthony. We may not have prostates, but we kind of know roughly where they are, and they are troublesome little devils. My Mr Sssue has no shame either when it comes to his bits and pieces, he’ll drop his drawers for pretty much anyone. So I have some understanding.

And we are allowed to give Steve a bit of sympathy, similar equipment or not.

Sue

Steve I have my fingers crossed too. Anne x

Hi Steve,

Hope everything goes ok for you :slight_smile:

Twinkle Toes x

Pembury hospital… I used to live near there. I live in central Paris now.

Your prostate Steve, keep a close eye on your PSA level, if it starts creeping up do something about it and ASAP.

I started by having a hip replaced it was a wonderful success my French orthopaedic surgeon has a terrific reputation, a great guy too. I had that completely replaced under local anaesthetic and was up and walking the same day.

I tell you this as it turned out to have been a tad dodgy, what none of us knew at the time was that my very odd GP had simply not been taking much notice of my bladder discomfort and constant peeing. He had performed the usual finger up the nether region a couple of times… “slightly enlarged” he said “let’s see how it goes” He said nothing about my PSA level having gone up to over 8 so in my ignorance I thought it wasn’t anything to be concerned about. To cut it short, my Dr was away for a while and so I saw another who looked at my results, blew a fuse and had me into hospital for tests as a matter of emergency.

A TIP, if the signs aren’t good seriously question the advisability of having a biopsy. I did, when I asked was it safe to shoot an instrument (needle with an end that grabs a sample of the prostate gland) through your presumably cancer-free rectum wall grab the sample and haul it back through the tiny wound in your rectum wall? Was there a risk of cancer cell contamination? I was told, “that’s not a daft question, but don’t worry with the prostate this is safe enough.”

Well, it wasn’t as it burst my prostate capsule which, as it turned out, was housing a virulent Gleason 4+4 cancer tumour which escaped the capsule. My op took the lot, it had been touch and go there was a great deal of cleaning up to do and I had radio therapy and then two years of hormone therapy which was no fun really.

My wonderful hip surgeon was shocked because he was a pioneer of the replacement via a very neat incision to the front of your leg in the near groin region - very close to the prostate gland. During this technique, no muscles are cut, thus no re-education is needed. However a great deal of stretching apart of the muscles is needed and a Gleeson 4+4 tumour right there is NOT recommended.

Why am I telling you all this? Well, the two-year hormone therapy anti-cancer treatment is tough, but even so, my reactions didn’t seem normal, my Paris oncologist professor and I were finally coming to the conclusion that the cancer treatment was covering another problem that was reacting badly to the hormone treatment and was better stopped. It took a while to diagnose primary progressive MS. I’m a lucky man as I’m 72, had a wonderful life and career and have got by remarkably well although now I know what the MS symptoms are it’s obviously been with me for at least 25 years! Yes there have been unexplained problems, deep fatigue, leg problems, involuntary limb movement, numbness, “pins and needles” - most of the usual, but it didn’t stop me, it was comparatively recently that I began to have balance problems but not long ago that I was hanging out of helicopters or filming from the roof or up the pantograph above the cable of the Chamonix cable car as we headed for the summit. I had no fear of heights, I loved my work. So while I can’t do that work any more I now write and find it just as exciting and fulfilling, so yes, I’m a very lucky man.

Thank you for the encouragement.

The GP came today and he didn’t like what he saw so it’s off to the jungle for tests.

Oh carp.

Steve

My mantra is, (and I really do believe this):

Don’t go down the ”Why me?” road, it’s so destructive in reality it’s ”Why not me?”

Life is indeed beautiful so make the most of it, enjoy, enjoy and bu**er th pain.

Something is going to get us all in the end, so why worry - especially as worry is carcinogenic!

So much is treatable even curable these days, much more than even 10 years ago so never give in.

An activity you love is the best medicine. I had to stop m beloved skiing - my balance is now naff so sking in a bucket isn’t really on, I had to stop filming, so I turned to research and writing and blow me if I wasn”t published! During my cancer treatment I was so engrossed in research and discovery that I didn’t have time to think about my woes.

During visits to the oncology radiotherapy dept, I saw children, babies that we coming in for cancer treatment, I saw the racks of individual cranial cages for people with brain tumours (I lost my wonderful younger brother to brain cancer) and I knew just how lucky I’ve been in life, and who to feel compassion for.

My MS gives me amazing rights! I have a terrific second-hand mobility scooter, it’s a larger one (an old but perfect Pride Celebrity XL8 - highly recommended). I nip about Paris, can park anywhere within reason free of charge. I can take it free on Paris buses, it travels free of charge on trains and almost all flights, I can use it in most lifts in shops - it’s given me much more than just freedom, it changes attitudes and it makes friends… really it does. Suddenly the notoriously standoffish Parisians are charming, nice! Helpful… Imagine that. I discovered that this city is absolutely wonderful to the handicapped. To celebrate this, in a moment of pure madness - and only because it was there, I drove it right around the Arc de Triomphe. I didn’t pussyfoot about either, I really mixed it with the 80 kph taxis and buses. Lo! Suddenly they started behaving themselves… ”Non Non, après vous monsieur” it was hilarious, not recommended, but huge fun.

That’s it, have fun, enjoy every moment. If you get squashed by a Paris Taxi while driving a mobility scooter around the Arc de Triomphe or driving around Marble Arch, well, it’ll give your family something to laugh about at the funeral.

I hope all goes well Steve. My OH had prostate cancer a few years ago and had the prostate removed. He was very proud of the ‘bullet wounds’ across his stomach from the surgery (which was done by a robot, guided by a surgeon). His PSA is now ‘virtually undetectable’, which is perfect. The biggest problem was the biopsy, not as scary as what happened to Paris7, but he got a very nasty infection as a result of the route a biopsy has to take to get to the prostate.

Whether it’s an enlarged prostate that has to be cut down, or a cancer, the recovery rate is pretty good nowadays.

I’ll keep fingers and toes X’d for you.

Sue

Good luck Steve, my husband is going through some nasty prostate problems too!

Always something, isn’t there Steve?

Take Care,

Nina x