I posted on here a couple of weeks ago having had an MRI which showed up some “increased activity” - have now had neuro letter via GP which says there are a number of areas in my brain and cervical part of my spinal cord consistent with demyelination. They also found some antinuclear factors in my blood test and I am still not really sure what that means.
I was asked to go back for a second MRI last Friday which included contrast dye (not my best bit!), which I thought was all linked to the above. However, the letter also says there was a “suggestion of a meningioma” and that was the reason for asking me back. Of course I have googled meningioma which has now sent me into a complete panic.
In the meantime my symptoms though very mild in relative terms (all sensory based, eg hot feels cold, touch feels painful) have not completely gone away in over 2 months - does that mean PPMS??
It all feels completely surreal as apart from the weird sensations I actually feel really good at the moment - yet the scans are throwing up abnormal things, and I go from feeling ok-ish about it all to in complete panic and not coping. I am not sure when the 2nd scan results will come through - I have another neurologist appointment on 8th april which seems like a lifetime away.
I am not sure if anyone can give me any words of wisdom.