Hi, no I don’t mind you asking at all. Saw my GP early Jan as had gone numb down one side, couldn’t feel the pin he put in my leg at all. We know him quite well, which helps I think, as my daughter has some health problems. He had just been on a CPD event where a neurologist had told them about the importance of getting a quick diagnosis. So he referred me to the neurologist, long waiting list so I paid for a private first appointment (and then transferred back). Neuro said it was 50/50 and referred me for an MRI. That showed some lesions and a possible meningioma, so invited back for 2nd mri with contrast to see if it was a meningioma. It is one but thought to be benign, having another mri next month to check if its grown any. no new lesions or symptoms so referred for L/P which doesnt look great.
I know in many ways I’m lucky, low level symptoms at the mo and quick diagnosis. But our life was already complicated enough - our daughter has a rare condition and we were told she would die soom after birth. She is now 2 and a half but there have been some scary moments, meanwhile trying to protect her older brother (aged 6) from too much worrying.
aapologies if any typos, typing one handed x