Hi Everyone
I signed up hoping to ask members about Sativex and the chances of getting a private prescription - whereby the patient pays for the medication themselves as a trial (for one month I think). I then got a little sidetracked as most people do I’m sure, reading threads and replies for days on end! You soon realise that, when they say everyone with ms suffers differently, that is true and evident. Bearing that in mind, when I say I feel as though I’m getting close to the home run so to speak, that is solely how it’s panned out for me over the last five to ten years, and by no means a typical example. It does help reading all the positive thoughts on here, often from people who have the right to be even more angry and despondent (Jan especially …very brave & just gets on with things). Anyway, it’s getting like a Ronnie Corbett monologue so - the reason for the title of thread … I was reading one thread entitled ‘Evolution …’ from the main topic of PPMS, and was shocked to read one chap saying that the combination of baclofen and ibuprofen, was a suicidal mix of medications. I was prescribed those, paracetamol and codeine for about three years before finally being diagnosed, and always thought they were two of the slightly ‘safer’ drugs. Apart from the baclofen, my ms nurse does wonder why the others were prescribed as I only had nerve pain to begin with - now they are useful for the inevitable muscle pain which comes with years of moving … in all the wrong ways! I’m not pro meds by any means, I tend to think that most for ppms just don’t work very well at all, but I don’t think it helps coming out with random comments like that. Sorry to go on … a bit long for a first post … I blame the ms!