I suspect that Pops has an excellent NHS neurological service. And if you are lucky enough to live in the right area, then you can receive an equally good service. That is to say that there are many places within the UK that have as good a service, but there are also many that, to be frank, have an abysmal service. Most, are like the area I live in, somewhere in between. Unfortunately the NHS works a ‘postcode lottery’ type of system.
I have access to a good MS nurse, not 24/7, but reasonably reachable. I see her maybe every 6 months. She is supportive, but can only do so much within the system.
I see a good neurologist, about every 6 to 12 months, he is very good on up to date DMDs, but access to these can often be very slow. Also, access to IV steroids is very difficult. For example, I saw him last week (he fitted me in last minute) because I have just stopped taking my DMD due to side effects. We agreed that I’d stay off a DMD for a year or so, pending a relapse and some clear remission. I asked whether when/if I have such a relapse it could be arranged that I have IV steroids as they seem to work best for me, and I want to be sure, if there is to be remission, that it happens asap. He agreed that it would be best but “it will depend on bed availability”. The last time he wanted me to have IV steroids, it took 3 months to arrange!!
I find it unimaginable that a relapse would be treated as an emergency, I once had a very bad relapse where I went to accident and emergency and was admitted to hospital. That was a really bad relapse, where I lost all feeling and movement below the waist (ie. became unable to walk or even move a single toe) over a period of 3 days. Other relapses have been dealt with in the main by the MS nurse and GP and I’ve been offered oral steroids.
The nurses who support my neurologist’s DMD provision are excellent. They are easily reachable by text or phone and are very helpful.
I’ve had quite a few MRI scans, but there is no system whereby you’d routinely have one every 6 months or even annually. Many people haven’t had one for years. I’ve had them due to diagnosis originally and because of DMDs.
Access to disease modifying drugs is patchy. You will get copaxone easily (I’d not heard of the 3 times per week version but I’m sure it’s available in the UK). If you have a good neurologist you will be given many options for DMDs, but some people are not given half the choices they should be offered.
I am also fortunate enough to see a neurological rehab specialist once a year. He is excellent on referrals to other services and makes very good recommendations regarding symptom relief.
I see a physiotherapist every so often. Typically, I’ll see someone once per week for maybe a month, then I’ll be left to get on with exercises on my own. Seeing a physio twice per week (unless privately funded) is unheard of under the NHS. I’ve not heard of ergo therapy. So I’m unsure whether this is or is not available on the NHS.
I have self funded FES (functional electrical stimulation for foot drop) as it is not supported in my local area. In other areas, it is NHS funded.
So, as you can see, in all likelihood, you will get a reasonable NHS service. Maybe not as good as in Germany in some areas, maybe better in others. But it will all depend on the area you live in.
Best of luck.