I am new to the forum and I am seeking help, if possible. My name is Laura, I have Relapsing Remitting MS and I am considering to move to Exeter from Germany. Since I am not familiar with the system in the UK, I was hoping someone could help me figure out how things are in terms of care and access to it.
I was diagnosed with MS in September 2012 and have been on Gilenya ever since, with no relapses or major side effect. I was wondering if that’s an established treatment in the UK and if anyone knows of any specialist in the area of Exeter who are familiar with it, since my neurologist strongly recommends that I don’t switch medications.
I am also concerned about the costs and the type of assistance I would be able to get within the NHS or some other private insurance, e.g. the cost of Gilenya itself, and of all the check-ups related to the medication and MS in general ( bi- or tri-monthly blood tests that are necessary with Gilenya, MRI scans, steroid treatments in case of a relapse, etc.) Can anyone tell me how straight-forward it is to obtain access to these services, using the infrastructure available in the Exeter area? Are there any specialists you can recommend? What would be the advantage, if any, to opt for a private insurance?
Finally, there is the question of waiting times. Can anyone give me an indication of how long it would take me to get to see a specialist, and wether I can directly get in touch with them to schedule my first appointment? Do I need to register for NHS before-hand?
I realize that these are quite a few and general questions, but already getting any information from people with first-hand experience with the system and the doctors in and around Exeter would be of great help.
Thank you very much in advance to those who will take the time to reply to my questions
Have a nice day,