I know MS isn’t a joint disease, but my joints are crunching and clicking all over the place.
For example, I can raise both arms out at right-angles to my body, crucifix-style, but both arms go over a crack, or bump, at the shoulder. Similarly, I can rotate both feet from the ankle, inwards or outwards, but both ankles go over a bump.
I’ve had complete Rheumatology screening - twice - all of which failed to reveal anything, and if I try to discuss it in connection with the MS, it’s dismissed as “not relevant”, and doesn’t even appear in my notes.
I’m just wondering if changes in the load-bearing capacity of my muscles could actually be causing damage to the joints, because nobody seems to think it’s a big deal.
I know noises, by themselves, don’t always indicate a serious problem, and they’re not accompanied by pain, exactly, although there is discomfort, as I can feel the movement isn’t smooth and unimpeded. It feels a bit like when something hasn’t settled in the right place, and you really want to crack it. Anyone who’s ever done this will immediately know what I mean - there’s not a pain, exactly, but just a sense of it not being right, and a tremendous sense of relief and satisfaction if it cracks back to where it should be.
However, mine are not cracking back to where they should be, but staying “not right”, and feeling permanently as if they’re out of place.
I feel I’ve already exhausted all the tests, and don’t know what else I should be asking for. Should I just accept this as part of MS, even if it isn’t widely recognized as such?
Sometimes I worry that I might have been misdiagnosed. And yes, I think that is worry, not hope, because I think I’ve got accustomed to the idea I have MS, and that I’ve just got to get on with it. But sometimes I think there’s something else sinister (As well? Instead?) they still haven’t found…