I was diagnosed with “active” MS at the start of December, waiting for an appointment to see the MS nurse since then to discuss treatment suggested by consultant. Have had to chase to even get confirmation that an appointment will be happening at some point soon. I contacted the MS nurse via email, since none of the phone numbers I’ve been given are ever answered, to ask if there would be an appointment soon and to say my ankles have been constantly stiff since for weeks now
The reply I got consisted of two sentences, the first saying you’ll “probably have an appointment in February” and the second saying that “MS doesn’t usually cause stiffness in joints, maybe get your Gp to check it out”. Is that correct? I’m trying to be so careful not to read too much into everything but now I’m worried I won’t be taken seriously if I mention anything. I’m overweight and in the past it has been used as excuse by GP (thankfully not my current one) to not be listened to. I’m overweight but I’m 6ft tall, active, working, don’t drink or smoke and have a toddler to contend with! The stiffness in my ankles, and cramping in my toes especially in the morning is concerning me.
I’m also worried I have brain fog often and nobody really believes me because I can’t communicate the issue well to folk, even those I know. I find myself losing words and it’s stressful. Again, I’m avoiding thinking it’s related to MS because I don’t want it to be. Does anyone else have this, could this and the ankles be due to MS or I’m a just overthinking? It’s so hard.