Don’t know if anyone has experienced this. I’ve had the MS hug before around my ribcage which is the normal sort of place for it but I’m now getting exactly the same feeling in my left foot/ankle area…feels really weird, like someone pushing and squeezing inside my skin.
To add insult to injury I’ve also developed a rigid big toe as i cannot move it in anyway upwards, it’s stuck solid, lol. My right foot and ankle are also playing up, I have pins and needles in my toes and I have the sensation of feeling like I have no toes which is yukky. Also have acute pain all around this area which is annoying as I know i haven’t tripped or ricked my ankle to cause this.
It’s horrible at the moment cos I’m hobbling everywhere and my right foot keeps giving way cos of the pain. I guess it must be a relapse as I’ve not really had these symptoms before but it just brings it home that MS is now causing me very noticeable problems as I’ve been fairly lucky in that I haven’t had anything which has affected my mobility before.
I don’t know if you can get the ‘hug’ round your ankle. I would’ve thought not. But there are weird sensations that can affect your feet in all sorts of peculiar ways.
I sounds to me like it could be a relapse, do you have an MS nurse who you could contact for some advice?
I do understand the feeling like you have pins & needles and simultaneously like they’re completely numb and yet painful all at the same time. Nerves are blighters for confused messages. Not to mention a frozen up toe.
If it were me, I’d take Amitriptyline for the tightness / painful feelings. (Or pregabalin, or gabapentin, etc…) But it all depends on what drugs you already take. Obviously if it is a relapse, then maybe steroids, see what your MS nurse suggests, or your GP.
Btw, it doesn’t count as a moan on here, you sometimes need to enumerate your strange pains and feelings. And we are the ones who understand, so feel free to tell us how you feel. It’s not moaning.
I have a very similar problem with my right footI thought it was old age! It’s damn painful whatever the thing is called, I would not survive without this forum to keep me sane and listen very politely to my moans. M
during my biggest relapse i had the hug around my knees. weird as hell.
they felt as though under pressure, but not exactly as if tightly wrapped in bandages. it felt that i should expect my range of motion and therefore mobility to be impaired but thankfully, it was not. i am also fortunate in that i never regarded it as painful; it was just odd. perhaps it was a something different to what you have?
i had the same sort of sensation in the knuckles of both hands.
the sensation would only occur and increase in severity for as long as i was in motion (ie. walking or wiggling my fingers, typing etc) as soon as the motion stopped, it would melt away.
with mind over (smashed white) matter, and with constant reassurance that although these joints felt super tight (from the inside out) they were in fact, perfectly mobile and essentially okay, i managed to persist without too much hindrance until it quite simply stopped happening as quickly as it came on!
Sometimes my knees feel like they are locked in a vice. Not actually painful but stiff,really really stiff. Tight. When I start off walking when they are like this, it’s robotical (is that actually a word?!). I struggle as I start from static, but loosen up as I progress. I never considered that it might be the Hug. I sort of assumed that was a tightening around the chest.