I had my MRi scan of brain last Thurs and have just had a call from the eye neuro dr.
The cannot discuss results over the phone but have looked at scan and are happy there is nothing showing that needs immediate intervention/treatment. As they suspected no brain tumour there… So good news on that aspect . They want to see me on the 30th March back in clinic. This is based on clinical need and availalbility of an appointment. Also they want to see how my eyes settle down re ON and nystagmus. Completely forgot to ask about driving as they didnt want me to until I saw them back in clinic.(due to the eye movements and vertigo) I would struggle anyway at minute…seems a long way off till I go back…surely if the mri is negative for" inflamation on the brain" they can tell you that over the phone?
I am finding this waiting not easy and appreciate its a process that we all have to go through…not being able to drive is hard as I am so independant…I now have rapid eye movements in both eyes, the left is moving up and down and the right one moves left to right…most of the time its subtle but also it can affect what I am looking at in terms of the image also moves…this can vary durng the day but more noticable in the mornings and eves or when I am concentrating or out and about also…I have had some pain in left eye over last week…sometimes its sharp and radiates at back of eye or painful when moving my eye…both eyes are stinging but no discharge…but vision in my right eye is now not good but no change in colour vision. My left is now lazy all the time and my weaker eye is doing its best to take over…but its very tiring! In meantime I just need to keep an eye on things and go to the eye A&E if my left eye gets worse in terms of vision or colour aspect…but am hoping it will start to improve over the next few weeks.