The last time I spoke about this to a dr he told me that i was depressed and had OCD. That was a long time ago and have found talking about how i feel difficult as a result. I am not depressed not even worried but curious?? does that make sense?? Here goes…
I have had bladder probs since late teens. In my late 20s I started having difficulties with my hands and leg. My hands had lots of pins/needles weakness and pain. My leg felt odd when i had an itch it felt like there was cloth between the skin and my fingers. I could feel pressure but not feeling?? My left eye went funny, a bit blurry I was referred to consultant who diagnosed Carpal tunnel syndrome. I hadn’t told any1 about my leg and eye thing so when he asked my about bowel/bladder, feelings in legs I told him…As i was going out of the door (literally) he said it maybe MS. I had MRI which didnt show anything I had nerve conductivity test the results were atypical and had several test like standing on tip toe, finger to nose etc . I am mostly incredibally tired. I crash into doorways, poor memory and 2 years ago lost hearing in my left ear over night. I know that there is no one who can say this is what is going on but I just wanted to say it without some one saying I had mental health issues. Thanks for the space to write this. Comments much appreciated.
Forgot to mention I want to see consultant about unconnected prob and one of the first things he said was ‘i see from your notes you have MS’ you can imagine I was shocked and all i could say was ’ I don’t ’
One thing’s for sure - no one on here’s going to assume you’ve got mental health problems by you saying your body is doing lots of weird things - well, that or we all have!
It sounds like you need to see your GP and get a neuro referral. MRI is not perfect, and some people with MS don’t have lesions that are visible on MRI for some reason, especially early on - so it’s long overdue that you had some new scans done.
It also sounds like you need to have a good look at your medical records. It’s not unheard of for some consultants and GPs of the past to withhold diagnoses “in the patient’s best interests”. Who gave them the power to make that kind of decision I don’t know, and thankfully it doesn’t tend to happen these days, but it’s not unheard of.
Hi I have appointment to see dr on 27th. Im nervous as In the past my visits have not gone well. They usually said I dwell to much on how I feel! Im alot older now and hopefully a little more assertive. I had a MRi when I lost my hearing to see if I had a tumour causing it the scan came back negative so im presuming they didnt see anything else as well. That was about two yrs ago. They put my hearing loss down to a virus destrtying my nerve in the brain ( I hadnt felt unwell at the time) The last time I spoke to consultant They decided I had Fibromyalgia which at the time as ME was being called yuppy flu and ridiculed so I didnt tell anyone… a long time has passed since then. Everytime I have a relapse I usually bump the car as my co ordination goes out of the window, extreme tireness, pain, pins needles and memory probs etc etc etc
If anyone can tell me what to ask the dr I have arranged for my notes to be available. Do I just come out with it?? Do I have MS or not or is it better to be more subtle? Thanks
If I were you, I say what the consultant said about MS in your notes and ask whether or not it was correct. So I guess subtlety isn’t really needed! Good luck! Kx
I dont think they will request an mri until other possibilities are ruled out. By all means tell them your concerns and wait for the reply. I finally had my mri on 3rd of this month and dx on 14th with ms. It took over 2yrs for dx and 18 months for neuro referral
I am having simular frustration with my surgery and I can see like me you lost your hearing in one ear a few years ago. Having lots of problems(even though using a hearing aid, which is not brilliant teamed with tinnitus) with this at work at the mo…Going back to GP, I had a visit with a Neuroligist and as I was leaving he said I was showing symptoms of MS but had normal brain scans, which was a shock and not something I expected him to say, but having read different posts on here, Neuro’s can say one thing but then write something else on your letter to your GP, so i waited for the letter to arrive at the Surgery and then rang them and asked them to confirm what he said, and they confirmed it said ‘Possible MS’. I spoke to my family and work about this, as I am on sick at the moment and my workplace has arranged for Occupational health Doctor to see me. To help me prepare for this, I requested copies of the letter from the Neuro’s to take with me, and it does not mention ‘Possible MS’. Now I am completely confused. It says progressive neuroligical dysfunction.
Thanks I hope u have more luck than me.I have never seen my letters from any of the specialist I have seen so have nothing to show my boss. me sying feedling strange and unwell didnt go down too well, they want something more concrete. I haven’t mentioned fibromyalgia as it was once ridiculed. As for hearing loss the specialist said wearing a hearing aid would be pointless as my ear is ok its my nerve in the brain that is damaged. Tinnitus sucks though. 24/7 Hope someone can shed some light on what u are going through and for me too. Its the not knowing that gets me.
I was interested in what the specialist said about not wearing a hearing aid? as its funny, becuase when I wear mine, all the extra noise I hear hurts my ear and its still difficult to know what people are saying so I have found myself just now wearing it and pray I hear all the important stuff, but I am made fun of in meetings.
Tell me about it most of the ‘fun’ things are said in good humour but it does wear thin after a while. Its the tinnitus that is worse for me than the hearing loss.
