I’m new to this forum and have not yet been diagnosed with MS. To date I think I have had at least four “attacks”. I have had blurred vision on and off now for 4 years. I have weak legs and often trip over or fall. I have a frequently numb face along with numbness in my arms and legs - I suffer from frequent restless leg syndrome and sometimes I get the feeling of hot water being poured down the front of them. I have had two episodes of bladder problems - once where it stopped emptying - this lasted for several weeks and I needed a catheter. Eight months later the opposite thing happened and it just emptied whilst I was out without any warning - so far the urologist has not been able to find anything wrong with my bladder. I am on amytriptiline for the nerve pain that I have in my bladder which does help me to sleep at night or else I am up all night long. Finally I think that I get the MS hug - i have this tight heavy feeling around my chest, like the muscles have gone into spasm - making it difficult to breath easily.
I am under a neurologist now and have only one lesion on my brain. I have hyperreflexia in my left leg and plantar extensor in my right foot. I have just completed some evoked potential tests but am waiting for the results. I am too waiting for an MRI of my lower spine. I have read that i should have an MRI with a 3T scanner - this is not available at my hospital. Should I pay for a private one or should I wait? Like so many people, I am very frustrated with the slowness of diagnosis and am fed up with feeling like a hypochondriac - am almost embarassed to go to the GP when something else happens - to the point I am now experiencing bowel problems and have been too embarassed to go. Any advice would be welcomed. Thank you for reading.